The Jones Family has partnered with CSF to form the Bobby Jones Chiari & Syringomyelia Foundation!

Bobby Jones Chiari & Syringomyelia Foundation:

about bobby jones

Merry Black

Our deepest condolences to the Black and Jones families on the loss of Merry Black, granddaughter of Bobby Jones. See below Merry at our Foundation launch just shy of one year ago.

To donate in her memory please visit:

May she rest in peace.

Read more about her here.

Bobby Jones

If Bobby Jones could have had his way, he would be remembered for being the only man in history to win golf’s Grand Slam (all four major championships in the same year), or perhaps for founding the Masters Tournament. Being an intensely private man, no one would have ever known that he was battling a disease that was slowly robbing him of the athletic powers that made him one of the greatest athletes of his generation… Yet, this private man had been forced by celebrity to live in the limelight. Now, in the latter half of his life, he was confronted with syringomyelia, a devastating disease of the nervous system. He was a man who neither wanted sympathy, nor patronization. He simply wanted a semblance of normalcy, a normal life that his abilities as a golfer had denied him.


He had acquired syringomyelia in a freak accident during a thunderstorm in 1929. His symptoms became noticeable in 1948 and finally diagnosed in 1950. Over the ensuing years, he would go from leg braces, to a cane, to a walker, to a wheelchair, and, finally, to a bed. As his condition deteriorated, his physical symptoms became too much to hide. Yet, even in the face of increasing disability, he continued to carry on as much as he could with the normal activities of life. After all, as he would say often, “In life, as in golf, you play the ball where you find it.”

That attitude, that spirit of sportsmanship, was what endeared him to golf fans on both sides of the Atlantic. It was the same spirit that touched the many friends and family members who watched him wrestle this implacable foe. His courage, good humor, and grace did not go unnoticed. Bobby Jones would die from his disease twenty-one years later in December of 1971, leaving behind a legacy of excellence, honor, and integrity, that remains unmatched to this day. His family has been committed to preserving and enhancing this precious heritage since then.

To that end, the Bobby Jones Family is proud to announce a new partnership with the Chiari Syringomyelia Foundation, now known as The Bobby Jones Chiari & Syringomyelia Foundation. With every person that our foundation touches, the legacy of Bobby Jones lives on. From our partnerships with medical centers around the world, to our invaluable work with the National Institutes of Health, to providing information to patients and family members, the Bobby Jones CSF offers hope and understanding. It brings the values of the greatest athlete of his day to the modern world, because hope never goes out of style.