Families affected by Chiari malformation, syringomyelia and related disorders have difficulties that only they can speak to— which is why CSF is here to help you bring your voice to your political representatives and ensure that public policies work for YOU.
Get involved in advocacy for patients living with Chiari, syringomyelia and related disorders but aren’t sure how to get in contact with your local representatives and officials? Here’s a quick step-by-step on how to get started. Make sure your voice is heard!
Reviewed on 11/2019