You can always organize your own fundraiser or awareness event to benefit the over three million families, in the United States alone, that are affected by Chiari malformation, syringomyelia, Ehlers-Danlos syndrome and related disorders.
There are lots of different kinds of fundraisers and awareness events you can organize with your friends, family and local communities. Bobby Jones CSF encourages you to print out the Chiari, syringomyelia and EDS fact sheets as educational materials. Bobby Jones CSF is also be able to send you brochures and other relevant materials to provide more information at your event!
Here are a few examples of the many kinds of fundraisers and events you can host:
…or maybe something you come up with on your own!
Not sure you want to organize an original fundraiser? You can always take part in a fundraising effort that is already in progress!
Bobby Jones CSF has fundraisers going on throughout the year that you can choose to host in your own hometown, with all your closest family and friends:
New fundraisers are always being added! Check back and learn how you can help advance research, education and awareness of Chiari malformation, syringomyelia and related disorders.
We love to hear about your fundraisers and events! You can even send us pictures and blurbs from your fundraiser and we’ll post it on our social media. We love when patients, their friends and their families help by spreading awareness and raising critical funding for education and research!