i want to PARTICIPATE

Participate in a Fundraiser

Host an Awareness Fundraiser

You can always organize your own fundraiser or awareness event to benefit the over one million families affected by Chiari malformation, syringomyelia, Ehlers-Danlos syndrome and related disorders.

Already hosted a fundraiser? Send us the details!

We love to hear about your fundraisers and events! You can even send us pictures and blurbs from your fundraiser and we’ll post it on our social media. We love when patients, their friends and their families help by spreading awareness and raising critical funding for education and research!

Hosting your own fundraiser

There are lots of different kinds of fundraisers and awareness events you can organize with your friends, family and local communities. Bobby Jones CSF encourages you to print out the Chiari, syringomyelia and EDS fact sheets as educational materials. Bobby Jones CSF is also be able to send you brochures and other relevant materials to provide more information at your event!

Here are a few examples of the many kinds of fundraisers and events you can host:

  • Runs, races and endurance events
  • Garage sale
  • Craft sale
  • Candy bar/chocolate sale
  • Spaghetti dinner
  • Plant sale
  • Pancake breakfast
  • Guest bartending
  • Dress down days
  • Karaoke (or “Chiari-oke”!)
  • Car wash
  • Poker tournament
  • Painting nights
  • Restaurant fundraisers
    • A lot of great restaurants like Buffalo Wild Wings, Panda Express, Applebee’s and many others have fundraising options that can help you Dine for a Cure!
  • Comedy night
  • Book sale
  • Shovel snow
  • Holiday gift wrapping booth
  • Any type of A-Thon (i.e. – Dance-A-Thon, Bike-A-Thon, Read-A-Thon, etc.)

…or maybe something you come up with on your own!

Join an existing fundraiser

Not sure you want to organize an original fundraiser? You can always take part in a fundraising effort that is already in progress!

Bobby Jones CSF has fundraisers going on throughout the year that you can choose to host in your own hometown, with all your closest family and friends:

  • unite@night (May – August)
    • Kickin’ Chiari Kickball Tournament
  • Crush Chiari, Smash Syringomyelia & Squash EDS (September)

New fundraisers are always being added! Check back and learn how you can help advance research, education and awareness of Chiari malformation, syringomyelia and related disorders.