It is central to Bobby Jones CSF’s mission to not only educate patients and their families, but also the medical and allied health professionals who will treat them about Chiari, syringomyelia and related disorders. To help better educate professionals, Bobby Jones CSF has developed the Consider Chiari campaign to better inform clinicians about best practices in diagnosis and care, improved treatment methods, and emerging research in the field that can help them in their clinical practices.
The situation in the U.K. for those living with Chiari malformation and cervical instability has been extremely challenging, with delays in diagnosis, lack of access to MRI imaging, treatment and care, and many needing to self-fundraise to travel abroad for surgery.
Bobby Jones Chiari & Syringomyelia Foundation is delighted to be partnering with The Ehlers-Danlos Society to bring together a day of global experts, to talk about the current knowledge and understanding in surgical and conservative management recommendations for hypermobile patients with these issues. We hope that this encourages a way forward for patients living with these conditions in the UK, that treatment, management, and care, could be an option.
Both organizations have been working internationally to improve the care and management in these areas and were honored to bring their experience to London at The Royal Society of Medicine on September 13, 2019.
Bobby Jones Chiari & Syringomyelia Foundation, alongside The Ehlers-Danlos Society, were delighted to invite health professionals and medical students to register for the event entitled Diagnosis and Management of Syndromes of the Craniocervical Junction and Roundtable Discussion.
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Through no fault of their own, many medical professionals are only vaguely acquainted with Chiari and the methods that exist to treat it. Some estimates say that it can take a patient an average of 6 years to recieve a proper diagnosis of Chiari malformation. Bobby Jones CSF wants to help change this.
The objective of the Consider Chiari seminar series is to spark awareness, putting Chiari and related disorders on the radar of more medical professionals and to increase the likelihood that patients’ needs will be met. We want people to Consider Chiari.
If you can, donate to support the Consider Chiari educational fund. Your gift will help educate healthcare providers as well as families of patients to recognize the signs and symptoms and understand the best treatments.
Just $25 helps to educate one medical professional at a Consider Chiari seminar. If you can’t donate, introduce CSF and its world-renowned Scientific Education & Advisory Board to your own doctor and ask them how they can get involved.
If you are a medical professional and would like to host a Consider Chiari Grand Rounds or CME-accredited seminar at your institution, feel free to contact us!
We have hosted several Consider Chiari lectures in the past, most of which offered Continuing Medical Education (CME) credits. You can click through and actually watch each lecture in our videos under the Bobby Jones CSF Educational Lecture Series.
Annual Cerebrospinal Fluid Disorders Symposium at Brown University – Various Speakers (CME)
Consider Chiari Grand Rounds at Lutheran General in Chicago – John Ruge, MD (CME)
Chiari Malformation & Syringomyelia at UNC Chapel Hill – Gretchen Delametter, CPNP-AC
Chiari Malformation: The Simple Gets Complicated at Johns Hopkins – Mark G. Luciano, MD, PhD
Chiari Malformations: An Overview – Violette Recinos, MD (CME)
Treatment of Chiari Malformations & Special Considerations – Krystal Tomei, MD, MPH (CME)
Complex Chiari Malformation – Tsulee Chen, MD (CME)
Syringomyelia – Charl Vorster, MD (CME)