Bobby Jones CSF Staff
Cathy lives in Twinsburg, Ohio with her husband Jim and three boys, Calvin, Brent & Travis. Calvin has Chiari malformation, syringomyelia, and high intra-cranial pressure and Brent has Chiari malformation, dysautonomia, mast cell and EDS.
Beginning in 2002, Cathy was a volunteer with the American Syringomyelia Alliance Project and then a board member. She was named ASAP’s volunteer of the year in 2005 for the work she’s done in raising funds at various events she set up.
Cathy was an original board member on the Chiari & Syringomyelia Foundation’s Board of Directors when CSF was founded in 2007. She continued raising funds and awareness through events and became an employee of CSF in early 2011.
Cathy’s past experience includes working for over 10 years in the pension administration field and was the Manager at a Pension Firm. She took some time off to be a stay at home mom, but continued her volunteer work through PTO, Twinsburg AC Travel Soccer, Welcome Wagon Club of Solon, ASAP and CSF.
Her work with CSF includes overseeing the unite@night walks, helping set up Chapters, advocacy work with the unite@thehill program, and works very closely with people on social media to continue to develop these programs and events. Cathy also travels to educational lectures and walk sites to meet many of the people she works with.
Cathy is currently a Board Member on the Twinsburg Chamber of Commerce and is Chairperson for the Twinsburg Woman In Networking group. Cathy is also a member of the Twinsburgs CERT (Citizens Emergency Response Team).
Cathy’s goal in working with CSF is to continue her work in Community Awareness programs, raise much needed funds for research and programs that educate about these disorders, and work with a medical research board and Board of Directors that has committed itself to the cause.