VIDEO ARCHIVE

Chiari @ School – Educational Advocacy

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2018 unite@thehill - Conference of Advocacy & Action

BETHESDA MARRIOTT - BETHESDA, MD/WASHINGTON, DC - JUNE 24-25, 2018
Registered nurse and school health consultant, Suzanne Oró, gives a fantastic review of what parents of children with Chiari, syringomyelia, dysautonomia, Ehlers-Danlos syndrome and other disorders have to do in order to advocate for their child's education. This is a great "how-to" for the navigation of school advocacy. Learn the difference between a 504 plan, an Individualized Education Plan (IEP) and how the federal laws protect kids struggling in school because of disability and chronic illness. Learn more about how Chiari and related disorders may affect your child's education here.

Revised: 9/2019