…Could you spell that for me?

Families express their struggle with Chiari malformation and syringomyelia from diagnosis through treatment and how we can make a difference, including the joining of the Jones family with the Bobby Jones Chiari & Syringomyelia Foundation, formerly known as the Chiari & Syringomyelia Foundation, in our fight to find a cure.

Several awareness videos made for CSF were professionally directed and produced by Emmy-award winning film makers, Bob Bagley and Sterling Johnson. These fine videos were made possible by a very generous grant from the Jordan Family Foundation. Stories just like the ones in these videos are used to introduce educational lectures at our regional Educational and Awareness Events around the country.

Revised: 9/2019 This production was made possible by a grant from the Jordan Family Foundation. Revised: 9/2019