CSF Common Data Elements (CDE)

We completed the first step of the CDE process in 2016 with the submission and subsequent acceptance of the Chiari I malformation Common Data Elements. You can find all of the NIH-supported CDEs (about Chiari and many other diseases and disorders) in the National Library of Medicine.

CSF Funded Research

• • • Think Tank Meetings (annual)
    • CSF Research Colloquia (annual)
    • CSF-Sponsored Hydrodynamics Symposia (every other year)

Upon scientific review by experts from the Bobby Jones CSF Scientific Education & Advisory Board, we were pleased to fund several grants which were submitted for review in response to our 2012-2013 Request for Proposals.

What’s New in Research

Visit this page to learn more about the following and more:

• Chiari Surgical Success Scale
• Annual Award for Chiari, Syringomyelia Research Excellence
• Chiari I Malformation Clinical Guidelines
• Craniocervical Instability Pipeline Projects
• Upcoming and previous research meetings

Previous Updates

• • • Request for Small Grant Proposals
    • The Duke University Genetics Study (closed)
    • New Researchers – 2012
    • National Institutes of Health Information

Marcy Carlson Speer Research Endowment

Reviewed on 2/2024