Bobby Jones CSF’s Research

CSF Common Data Elements (CDE)

We completed the first step of the CDE process in 2016 with the submission and subsequent acceptance of the Chiari I malformation Common Data Elements. You can find all of the NIH-supported CDEs (about Chiari and many other diseases and disorders) in the National Library of Medicine.

CSF Funded Research

Upon scientific review by experts from the Bobby Jones CSF Scientific Education & Advisory Board, we were pleased to fund several grants which were submitted for review in response to our 2012-2013 Request for Proposals.

What’s New in Research

Visit this page to learn more about the following and more:

  • Chiari Surgical Success Scale
  • Annual Award for Chiari, Syringomyelia Research Excellence
  • Chiari I Malformation Clinical Guidelines
  • Craniocervical Instability Pipeline Projects
  • Upcoming and previous research meetings

Previous Updates

Marcy Carlson Speer Research Endowment


Reviewed on 2/2024


Stay up-to-date on all the research going on related to Chiari, syringomyelia and related disorders in easy-to-understand bits. COMING DURING SEPTEMBER



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