PARENT CONNECTION

PARENT TO PARENT

Parent Connection is meant to offer you valuable links to information that you might find helpful in advocating for your child’s health. Some of these web sites provide just one example of those that have been recommended by parents, so search for other sites specific to your geographical area for additional information.

This page will continue to evolve over time, so make sure to check back. If you have any questions or suggestions about what should be included on this page, please feel free to contact us.

Learn more about these disorders individually here.

FIRST THING’S FIRST… HOW MUCH DOES IT HURT?

The first and foremost concern for parents is just how much their child is suffering. It can always help for a child to have visuals in order to properly verbalize their pain. Please reference the Wong-Baker FACES(R) scale to help you make important decisions about your child’s treatment. And remember to always consult with your child’s physician before going through with any treatment plan.

For clarification of the pain scale, please visit The Wong-Baker FACES website.

HELPFUL LINKS FOR PARENTS

Links Disclaimer: Links of interest to other websites from this location are provided as an added value by the Chiari & Syringomyelia Foundation, Inc. By accessing the links from this site, you will be leaving CFS’s web site.  Although we have reviewed the information on these sites prior to creating the links, we are not responsible for the content of the sites. Information on these website pages may become dated or change without notice, and we do not represent or warrant the information contained on these linked pages as complete or accurate.  Please be advised that you will no longer be subject to, or under the protection of, the privacy and security policies of CSF’s website.  We encourage you to read and evaluate the privacy and security policies on the site you are entering which may be different from those of CSF.

Education

Parent Support

Medical