Privacy Policy

This privacy policy describes how Bobby Jones CSF, Inc. collects, uses and protects any information that you provide to the Bobby Jones Chiari & Syringomyelia Foundation, a New York corporation, (“Bobby Jones Chiari & Syringomyelia Foundation”, “Bobby Jones CSF, Inc.”, “Bobby Jones CSF”, “us”, “our”, or “we”) and applies to the Bobby Jones CSF website or mobile site at, or any website, mobile site or application that links to this privacy policy, accessed via any device.  If you have any questions regarding the information in this privacy policy, please do not hesitate to contact us. Should we ask you to provide any identifiable information when using this website, you can be assured that it will only be used in accordance with this privacy statement. Bobby Jones CSF may change this policy occasionally by updating this page. You should check this page from time to time to ensure that you are satisfied with any changes. This policy is effective from 6/27/14.


We may collect the following information:

  • Name and job title
  • Contact information including mailing and e-mail address
  • Demographic information such as postcode, preferences and interests


We require this information to understand your needs and provide you with better service, in particular for the following reasons:

  • Internal record keeping.
  • We may periodically send emails containing information that we think you may find interesting using the email address, which you have provided.
  • From time to time, we may also use your information to contact you by email, phone, fax or mail. We may use the information you provide to us at those times to customize the website according to your interests.


We are committed to ensuring that your information is secure. In order to prevent unauthorized access or disclosure we have put in place suitable physical, electronic and managerial procedures including the use of robustly password-protected archiving services, in order to better safeguard and secure the information we collect online. These high-level industry Secure Sockets Layer (SSL) technology allows us to keep your personal information as secure as possible and prevent the loss, misuse and alteration of this identifiable information. Bobby Jones CSF records “cookies” when a visitor makes a donation using the Donate Now button. These “cookies” are used to accurately track a user from one navigation page to the next during one online session and these cookies do not contain personally identifiable information. Similarly to all other websites that provide services to its visitors, Bobby Jones CSF records information concerning Internet protocol (IP) addresses, browser type, ISP, referring/exit pages, platform, date/time, page navigation, and device in order to track visitor engagement with our content and to curate website material that is heavily in demand by our constituents. Some of these services require working with our partners including Salesforce, MobileCause, GiveSmart, Mailchimp, and Google Analytics. To remain a well-informed consumer, please individually review the Salesforce privacy policy here, the MobileCause privacy policy here, the GiveSmart privacy policy here, the Mailchimp privacy policy here, and the Google privacy policy here.


Bobby Jones CSF respects your utmost privacy and will never sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so.

If you believe that any information is incorrect or incomplete, please write to or email us as soon as possible so that we may promptly correct any information.


Our website may contain links to other websites of interest. However, once you have used these links to leave our site, please bear in mind that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information that you may provide while visiting such sites. These outside sites are not governed by this privacy statement. You should exercise caution and review the privacy statement applicable to the website(s) in question.


Our site provides users the opportunity to opt-out of receiving communications from the Bobby Jones Chiari & Syringomyelia Foundation. To request that you not receive particular communications, please send an e-mail to, call 718-570-0057, or mail your request to Bobby Jones Chiari & Syringomyelia Foundation, 69-39 Yellowstone Blvd. #216, Forest Hills, NY 11375.  Please allow up to five business days for your request to be fulfilled. You may also feel free to contact us via these aforementioned channels for any other reason.