*Due to COVID-19 all 2020 unite@night Walks will be virtual*



unite@night Chiari walk is a collection of one-mile, casual evening walks around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, and related disorders. These walks help support local Chapters, large-scale research and education efforts and ongoing awareness projects that benefit the families in the United States and abroad who suffer every single day from these disorders.

How to set up your own Chiari, syringomyelia, EDS or related disorder walk

*Due to COVID-19 all 2020 unite@night Walks will take place virtually.* 

In the interest of safety, due to COVID19, we will be holding our unite@night gatherings VIRTUALLY. We have two options available but feel free to be creative!

  1. Join the Bobby Jones CSF National Virtual Walk and virtually walk on 9/1/2020

SIGN UP HERE to walk with us VIRTUALLY

  1. Set up your own virtual walk and invite your family and friends to join in raising funds and spreading awareness “virtually” anywhere!

SIGN UP HERE to host your own VIRTUAL walk

Help us unlock the answers to these disorders. Each step you take, no matter how difficult, brings hope to patients and their loved ones. Be the key to unlocking real solutions. Reach your fundraising goal by sharing your customizable Classy page or create a Facebook Fundraising page!

If you would like to get involved or if you have any questions/concerns about unite@night Chiari walk, send an email to cpoznik@bobbyjonescsf.org or call the unite@night office at (330) 998-6195.

Registration Instructions
Bobby Jones CSF W-9
IRS Letter of Determination
Bobby Jones CSF Brochure
Chiari Malformation (CM) Information Page
Ehlers-Danlos Syndrome (EDS) Information Page
Syringomyelia (SM) Information Page
Coloring pages and Puzzle pages
Facebook Fundraiser and Banner


Find more information about corporate sponsorship HERE. Interested in sponsoring? Contact Cathy Poznik at: cpoznik@bobbyjonescsf.org or (330) 998-6195.


Not a big family or corporation, but want to sponsor a local Chiari, syringomyelia and EDS walk in your area? Sponsorship markers can be purchased at either $50 or $100 per sponsorship! Complete and return this form.

When you raise money for the Bobby Jones CSF unite@night Chiari walks, you are raising important funding for education and awareness programs, as well as groundbreaking research in the fields of Chiari malformation, syringomyelia and all related disorders. As if that wasn’t enough of a reason to set up your own Chiari walk, you have the chance to win amazing prizes, too!

2020 Recognition Prize List

*These prizes are available to ALL unite@night walkers. If you participate in a Solo Walk, you are equally as eligible to win any of the above prizes as a group walker!

How do I raise money for my Virtual Walk?

You can call on friends, family, neighbors, co-workers (whomever!) for small donations to support your cause. For example, you can try the “pay it forward” technique. Recruit 10 people to donate $25 to your walk and ask them to recruit 10 people to do the same, you have just raised $2,500 for your walk, with practically no work!

How are donations collected?

You will be able to use the Classy fundraising website, just as anyone participating in a group walk would OR set up a Facebook Fundraiser! You may ask people to donate online and credit you directly, or they are able to send in a check or money order made payable to “Bobby CSF” to the address below. You are discouraged from sending cash in the mail: it’s just not safe! If you have collected your donations in cash (since most people do donate this way), please convert that cash to a cashier’s check and mail it in! For assistance on how to do so, pay a visit to your bank and talk to the local teller.

Make checks payable to “Bobby CSF” and send to:
Bobby Jones CSF
Attn: Andrea Grosz
69-39 Yellowstone Blvd. #216
Forest Hills, NY 11375

Create your own “I walk for” photo!

Download PPT template file here or the individual picture templates below.


UNLOCKING ANSWERS while sheltering in place

In light of the COVID19 restrictions in most U.S. states to shelter in place, we can still use your help! Register here and learn more on how to get your own purple Bobby Jones CSF branded bandana to UNITE@HOME

Every $35 raised you will receive a purple Bobby Jones CSF branded bandana. Create your own protective mask at home! 

*Limit of 4 per campaign