We invite you to become a member of the “Bobby Jones Loyalty Club” – a supporter we can depend on, who helps us in our mission, throughout the year, with regular monthly donations. As a member of this club, you will be playing a crucial role in furthering our research, education, and advocacy efforts this year and beyond.
Will you become a member of the Bobby Jones Loyalty Club with a monthly recurring donation?
As a special thanks for your generous commitment, if you join with a monthly contribution of $25 or more, we will send you a special gift.
Your monthly contribution will help us by not only sustaining our efforts, but strengthening and growing them…
- Our research network is in full swing with the establishment of the Chiari Clinical Research Consortium (CCRC). This collaborative group of nationally recognized neurosurgeons is working on global participation in surgical trials research. We’re already planning a strategic plan to see what this Consortium becomes over the next 3, 5 and 10 years!
- Initial data from our International Patient Registry is being analyzed right now and will be published and presented throughout 2024. Your input is already helping to build our strategies over the next decade!
- Last year, we finished working on formal, clinical Guidelines in the treatment of Chiari malformation in adults and children. We’re already working to expand this work to help fill in the gaps left by the lack of medical evidence.
- We are continuing our virtual “Ask the Expert” series and re-establishing our in-person lectures which have helped patients and researchers get answers to questions about these conditions in real time. We have also increased our virtual support groups, for adult patients, parents and young adults.
- We have funded millions of dollars worth of education and research projects/meetings in our first 16 years and have impacted more than 3.5 million people around the world who are looking for answers. With your help, we can continue to move forward in our efforts and have our most impactful year so far.
On behalf of all of us at the Bobby Jones Chiari & Syringomyelia Foundation, thank you for being a part of our community. With the same focus, determination and integrity as the great Bobby Jones, and with your help, we will rise to the challenge to conquer Chiari, syringomyelia and related disorders.