Welcome to our News page! Every month, we will share important, interesting or newsworthy information about what’s happening with Bobby Jones CSF and what we feel you may want to know! Learn about our programs, upcoming educational and fundraising events, virtual support group & Ask the Expert meetings and research projects. We look forward to sharing it all with you!
Please consider supporting our 2024 Annual Fund to keep all of our important initiatives moving forward. Donate here.
We can’t do it without you!
Every dollar you donate is put to work exponentially. These pages highlight the work your donations have made possible!
Stay tuned for both in-person and virtual lectures in 2025!
Have a topic of interest? Contact: mpoppe@bobbyjonescsf.org
Are you looking for support but maybe aren’t ready for a face-to-face group meeting yet? Maybe the timing of the meetings aren’t good for you? You can join our online support group on Inspire.com – Chiari & Syringomyelia Unite.
We hold a support meeting for those who are HIGH SCHOOL and COLLEGE aged every last Sunday of the month at 5:00pm ET and for ADULTS & CAREGIVERS every last Tuesday of the month at 7:00pm ET.
High School/College Support Meeting – Sunday, December 22 @5pm ET
Attending/presenting at the annual meeting of pediatric neurosurgeons. In addition to our ongoing research projects, we are excited to be attending a neurosurgery meeting from December 12-15th in New York City! BJCSF staff will be presenting some of the work we’ve done over the past year, as well as begin/continue other important projects to come in 2025. Some of these projects include topics around craniocervical instability in adult patients, idiopathic intracranial hypertension, and the complex work involved in transitioning a patient from being seen by a pediatric health care system to an adult one.
Thank you so much to everyone who participated our 2024 unite4answers event. We appreciate everyone who was able to be a part of this wonderful community!
This year, we raised almost $350,000 from our unite4answers events and we have you to thank!! Stay tuned for the 2025 unite4answers chairperson registration coming soon!
A huge shout out and thank you to the 2024 unite4answers National Sponsors. We appreciate your commitment to help make a difference for the millions of families affected by these disorders.
Bobby Jones CSF is committed to helping the over 3.5 million people in the United States, and my more worldwide, who are living with Chiari malformation, syringomyelia, and related disorders. Our fundraising supports the organization’s critical research initiatives and provides comprehensive support services and educational programs to everyone affected by these disorders. Join us at an event near you!
SAVE THE DATE FOR OUR 2025 EVENTS!!
Saturday, March 1
Casino Night – Honoring Paul Farrell, Bobby Jones CSF Chair Emeritus
Hilton Garden Inn
Staten Island, New York
Saturday, October 18
Dinner Dance for a Cure
Hilton Garden Inn
Twinsburg, Ohio
