Welcome to our News page! Every month, we will share important, interesting or newsworthy information about what’s happening with Bobby Jones CSF and what we feel you may want to know! Learn about our programs, upcoming educational and fundraising events, virtual support group & Ask the Expert meetings and research projects. We look forward to sharing it all with you!


11/4 – Ask the Expert Virtual Q&A – Dr. James Stephen on The Initial Appointment – Additional Conditions to Evaluate
Dr. James Stephen, neurosurgery specialist in Aurora, CO, is joining us on November 4, 2021 for a virtual Ask the Expert lecture and Q&A. Dr. Stephen is speaking on the topic of The Initial Appointment – Additional Conditions to Evaluate. Physicians and patients familiar with Chiari know that it can be a complicated disorder. Dr. Stephen shares his thoughts and practices when evaluating patients, especially in the first consultation. Register here!

11/11 – Live Lecture – Dr. Hill at MUSC
On November 11th, Dr. Hill joins us for a live lecture at the Medical University of South Carolina following a patient support meeting. Dr. Hill will focus on Ocular Complications Associated with Chiari Malformation and Associated Disorders.



Introducing a support meeting for children ages 6-9 with Chiari, syringomyelia and related disorders! We all know the benefits of connecting with someone who knows just what you’re going through, let’s show our kids that they aren’t alone in this fight. Parents, accompany your child or children to the 6:30pm meeting and then stay on with us for our usual 7:00pm parent meeting!

11/9 @6:30pm – Children Support Meeting

11/9 @7:00pm – Parent Support Meeting

11/28 @5:00pm – High School/College Support Meeting

11/30 @7:00pm – Adult Support Meeting


Continuing our work from October, we will be progressing with the Chiari Surgical Success Scale. We are making plans to meet with each PI and site coordinator, in order to be ready to launch the project at the end of this year.

The 2021 Research Colloquium presentations will once again be transcribed and later made available in a book format sometime next year.

Additionally, BJCSF will attend a meeting held by the OSC Transformative Health Disparities Research Initiative. Our goal is to better understand the possible disparities in diagnosis and treatment that are present in neurological disorders and how we can help address them.

We also expect to make a new survey available in the BJCSF International Patient Registry, so be on the lookout for that soon!


Our 11th Annual International Night of Light Gala will take place on November 20th at the Metropolitan Club in Washington DC. This exclusive black-tie event is almost sold out, as there are only two seats left. For more information or to purchase tickets, visit here.

Thank you to everyone who attended ans supported the Dinner Dance for a Cure “Celebration” on October 23rd. Event pictures can be seen here!

Save the date for the 9th Annual Bobby Jones Classic! Next year’s event will be held on March 27 & 28 at East Lake Golf Club in Atlanta, Georgia. Registration will open soon. For more information, visit the Tournament website here.


There’s still time to register to do a Solo Walk and raise $50 to earn your (very soft) 2021 unite@night t-shirt.  If you raise more than $50, you will earn another recognition prize. Register here for a solo walk.

Shop Amazon for the Holidays and Support Bobby Jones CSF

Thanks to customers shopping at smile.amazon.com, or with AmazonSmile turned on in the Amazon shopping app, everyday purchases generated over $286 million in donations to charities worldwide so far!
Shop right now through the link below and AmazonSmile will donate a portion of your proceeds back to Bobby Jones CSF at no additional cost! You can do good just by purchasing items you already need!

If you remember to go to AmazonSmile first, every time you shop, that’s awesome! For most people, the best thing to do is add a browser extension that automatically redirects you.

For Google Chrome, check out Smile Always

For Firefox, check out Smile Redirect

For Safari, check out KeepOnSmilingThese extensions will automatically redirect you to your smile.amazon.com page every time, so you will never need to remember to go to smile.amazon.com first!

Happy holidays and happy shopping!