Our mission

Our mission

To advance knowledge through Research and to Educate the Medical, Allied Sciences and Lay Community about Chiari malformation, Syringomyelia and related disorders

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I AM A PATIENT

Have you or your loved one been diagnosed with Chiari malformation, syringomyelia, Ehlers-Danlos syndrome, or another related disorder? Maybe you’ve had a diagnosis for a long time and you are looking for more information? Visit I am a Patient to learn more about things that matter the most to you. You’ll find more information about the disorders and better understand what to expect from surgery. You can also keep up-to-date on upcoming events that you can attend and any new research efforts.
 
*Disclaimer: you are currently on a preview version of our new website. It is not yet complete! Please pardon our “mess” while we’re still under construction! Contact us with any questions at: info@bobbyjonescsf.org

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I AM A DOCTOR

We take pride in our ability to share relevant information with doctors and other medical professionals. Visit I am a Doctor to read more detailed information about Chiari malformation, syringomyelia and related disorders and find out about our medical- and scientifically-oriented events. You can also learn more about our medical education program “Consider Chiari” and find out how to implement the program at your hospital or institution.
 
*Disclaimer: you are currently on a preview version of our new website. It is not yet complete! Please pardon our “mess” while we’re still under construction! Contact us with any questions at: info@bobbyjonescsf.org

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I AM A RESEARCHER

Advancing research is a critical part of the Bobby Jones CSF mission. As such, we make sure that we use our network of medical professionals and researchers to connect the dots between the clinic and the lab. We are passionate about encouraging information sharing to spark ideas that lead to breakthroughs.
 
*Disclaimer: you are currently on a preview version of our new website. It is not yet complete! Please pardon our “mess” while we’re still under construction! Contact us with any questions at: info@bobbyjonescsf.org

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