About Us
News
Events
Videos
unite4answers
Ways to Give
Contact Us
View this site in other languages
DONATE
Chiari-Related Diseases
I am a Patient
I am a Doctor
I am a Researcher
CLOSE X
I AM A DOCTOR
I AM A PATIENT
I AM A RESEARCHER
CHIARI-RELATED DISEASES
ABOUT
NEWS
EVENTS
VIDEOS
unite4answers
CONTACT US
WAYS TO GIVE
View this site in other languages
DONATE
VIDEO LIBRARY
VIDEO LIBRARY
I am a Researcher
CSF INTERNATIONAL HYDRODYNAMICS SYMPOSIA
I am a Patient
Patient Stories
Physician Education Lectures
Unite@theHill
I am a Doctor
Consider Chiari
CSF Research Colloquia
CSF Symposia
CSF Think Tank
Filter:
Month
Month
January
February
March
April
May
June
July
August
September
October
November
December
YEAR
YEAR
2024
2023
2022
2021
2020
2019
2018
2017
2016
2015
2014
2013
2012
2011
2010
05/2024
EVENT
EVENT
Doctor
Patient
Researcher
Signature
TOPIC
TOPIC
101s and Overviews
Advocacy
and Other Research/Etc
atlantoaxial rotary instability
Autoimmune
basilar invagination
Bobby Jones
Brain Fog
cardiology
Caregivers
Cerebrospinal Fluid
Cervical Medullary Syndrome
Chiari Malformation
Chiari@School
Chronic illness
cirugía
Cognition
Cognitive Behavioral Therapy
Cognitive Function
Common Data Elements
Complex Chiari
connective tissue disorders
craniocervical instability
Digestion
dolor de cabeza
Dysautonomia/Autonomic Issues
Dystonia
Ehlers-Danlos Syndrome
Engineering/Mathematic Research
Genetics
Giving
Headache
Hydrocephalus
idiopathic intracranial hypertension
Injury
Instability/Hypermobility
intracranial hypertension
Intracranial Pressure
Leaky Gut Syndrome
malformación de chiari I
Mast Cell Activation
Mast Cell Activation Disorder
Meditation
MRI
Myelomeningocele
Neuro Connect Summit
Neurodegenerative
Neurology
Occipito-cervical fusion
Occupational Therapy
Ophthalmology/Eye
orthostatic intolerance
orthostatic tolerance
Other Conditions/Considerations
Pain
Pediatric
Physical Therapy
POTS
Pregnancy
Pseudotumor Cerebri
Psychology
Q and A
Quality-of-Life
Radiology
Scoliosis
shunt
síntomas
Sleep
Sleep Problems
Spinal Deformity
suicide
Surgery
symptoms
Syringomyelia
Telehealth
Tethered Cord
Therapy
TMJ
Tonsillar Herniation
tratos
Trauma
Treatment
unite@thehill
Vascular Issues
Veterinary
Wellness
SPEAKER
SPEAKER
Adam Pelah
Amanda Aikulola
Anthony Podgoršak
Cassy Langa
Chantelle Bennett
Christie Cox
Cortney Gensemer
Courtney Rousse Sparks
Dan Doherty
Deborrah Truex
Deirdre Fischer
Devon Poeta M.S.
Diane Mueller
Dorothy Poppe
Dr. Adnan Qureshi
Dr. Alan Hakim
Dr. Alan Pocinki
Dr. Alexander Casagrande Canheu
Dr. Alexander Mark
Dr. Alexios Carayannopoulos
Dr. Allison Ashley-Koch
Dr. Amanda Baker
Dr. Amanda Sacks-Zimmerman
Dr. Amit Sandaine
Dr. Anand Saggar
Dr. Anders Eklund
Dr. Andreas Linninger
Dr. Andrew Hurd
Dr. Andrew RInger
Dr. Andrew White
Dr. Ane Uriarte
Dr. Angela Anderson
Dr. Anil Nanda
Dr. Anne Benninghaus
Dr. Anne Maitland
Dr. Anthony Wang
Dr. Aria Fallah
Dr. Aruna Rao
Dr. Atiq Durrani
Dr. Aubrey Verdun
Dr. Barth Green
Dr. Benjamin Elder
Dr. Bermans Iskandar
Dr. Billy Huh
Dr. Blair Grubb
Dr. Brad Tinkle
Dr. Brandon Rocque
Dr. Brian Dlouhy
Dr. Brian Hocum
Dr. Bruce A. Young
Dr. Bryn Martin
Dr. Carolyn Carey
Dr. Carolyn Harris
Dr. Cassie Parker
Dr. Catherine Loughin
Dr. Catherine Mazzola
Dr. Charles Parker
Dr. Christina Gurnett
Dr. Christina Markunas
Dr. Christine L. Trask
Dr. Christopher Bertram
Dr. Christopher L. Passaglia
Dr. Clair Francomano
Dr. Claire Jones
Dr. Claudiu Austin
Dr. Corina Drapaca
Dr. Cormac Maher
Dr. Curtis Dewey
Dr. Curtis Doberstein
Dr. Curtis Rozzelle
Dr. Daniel Couture
Dr. Daniele Rigamonti
Dr. David Bauer
Dr. David Gordon
Dr. David Limbrick
Dr. David Rothner
Dr. David Sacco
Dr. David Sandberg
Dr. David Tauben
Dr. Dennis Fitzgerald
Dr. Derek Neilson
Dr. Diane de Zélicourt
Dr. Dimitrios Nikas
Dr. Dominic Marino
Dr. Donlin Long
Dr. Douglas Brockmeyer
Dr. Douglas H. Kelley
Dr. E.B. Kuhn
Dr. Edward Benzel
Dr. Edward Covington
Dr. Edward Stopa
Dr. Eleuterio Toro
Dr. Eric Canavan
Dr. Eric Jackson
Dr. Eric Singman
Dr. Eric Trumble
Dr. Francesco Mangano
Dr. Francois I. Luks
Dr. Frank Loth
Dr. Fraser Henderson
Dr. Gabriel Haller
Dr. Geert W. Schmid-Schöenbein
Dr. Gerald Grant
Dr. Gerald Tuite
Dr. Gerard Guillory
Dr. Glen Manzano
Dr. Harold Rekate
Dr. Holly Gilmer
Dr. Ian Heger
Dr. Ilene Ruhoy
Dr. Imram Chaudry
Dr. Indran Davagnanam
Dr. Irene Piryatinsky
Dr. Jacob AuBuchon
Dr. James A. Stadler
Dr. James Glenn
Dr. James Stephen
Dr. Jan Dommerholt
Dr. Jane Schreiber
Dr. Janice Santos-Cortes
Dr. Jared Fridley
Dr. Jarod Roland
Dr. Jay Shetty
Dr. Jean Marc Voyadzis
Dr. Jefferson Doyle
Dr. Jeffrey Brinker
Dr. Jeffrey Greenfield
Dr. Jeffrey Greeson
Dr. Jennifer Strahle
Dr. Jeremy Schmahmann
Dr. Jessica Spats-Zimmerman
Dr. Ji Buethe
Dr. John C. Vardakis
Dr. John Heiss
Dr. John Loeser
Dr. John Mitakides
Dr. John Oró
Dr. John Oshinski
Dr. John Ruge
Dr. Jonah Murdock
Dr. Joseph Tregaskes
Dr. Judith Scheman
Dr. Judy Huang
Dr. Julian Rey
Dr. Julie Roth
Dr. Justin Virojanapa
Dr. Jyoti Krishna
Dr. Keith Mankin
Dr. Keith Sharp
Dr. Kenneth Liu
Dr. Kenneth Perrine
Dr. Kent Andre Mardal
Dr. Kevin Lasko
Dr. Khaled Gad
Dr. Konstantina Svokos
Dr. Kristen Yeom
Dr. Krystal Tomei
Dr. Lance LaCerte
Dr. Lindstrøm
Dr. Liwei Guo
Dr. Lucinda Halstead
Dr. Luis Rodriguez
Dr. Lynne Bilston
Dr. Malini Narayanan
Dr. Malisa Sarntinoranont
Dr. Marc Del Bigio
Dr. Marcus Stoodley
Dr. Maria Castells
Dr. Marianne Schmid Daners
Dr. Marijan Klarica
Dr. Mark Luciano
Dr. Mark Proctor
Dr. Mark Souweidane
Dr. Mark Wagshul
Dr. Martin Weltz
Dr. Maureen Lacy
Dr. Michael Chan
Dr. Michael Egnor
Dr. Michael Healy
Dr. Michael Sharp
Dr. Michelle Nichols
Dr. Misao Nishikawa
Dr. Myles Koby
Dr. Nanna MacAuley
Dr. Nathaniel Watson
Dr. Neena Marupudi
Dr. Neil Patel
Dr. Nicholas Theodore
Dr. Nicole Canavan
Dr. Nir Shimony
Dr. Noam Alperin
Dr. Oliver Lawless
Dr. Oliver Wieben
Dr. Olivier Balédent
Dr. Paolo Bolognese
Dr. Patricia Meegan
Dr. Patrick Segers
Dr. Pavel Klein
Dr. Per Kristian Eide
Dr. Peter Rowe
Dr. Petra Klinge
Dr. Philip Allen
Dr. Prabhakar Deonikar
Dr. Pradeep Chopra
Dr. Quan Jiang
Dr. R. Michael Scott
Dr. Ralph Sinkus
Dr. Raymond Damadian
Dr. Rebecca Burwell
Dr. Richard Ellenbogen
Dr. Richard Figler
Dr. Rob Lloyd
Dr. Robert Kellogg
Dr. Robert Parrish
Dr. Rocio Moran
Dr. Roger Kula
Dr. Roxana Carare
Dr. Rupinder Singh
Dr. Russel "Chip" Norris
Dr. Samuel Browd
Dr. Sarah Hemley
Dr. Sarah Merritt
Dr. Sarel Charl Vorster
Dr. Scott Haines
Dr. Sean C.L. Deoni
Dr. Sean D. McEvoy
Dr. Serge Cirovic
Dr. Shaokoon Cheng
Dr. Shawn Vuong
Dr. Shobhan Vacchrajani
Dr. Si-Quong June Liu
Dr. Sophie Foss
Dr. Stacy Fisher
Dr. Steffi Dreha-Kulaczewski
Dr. Stephen Grill
Dr. Stephen P. Salloway
Dr. Steven Hwang
Dr. Steven Proulx
Dr. Sunil Patel
Dr. Sylvia Lucas
Dr. Tavarekere Nagaraja
Dr. Theresa Gonzalez
Dr. Thomas Gruffi
Dr. Todd Bell
Dr. Tony Lucey
Dr. Travis Ross & Dr. Mark Paterson
Dr. Travis Turner
Dr. Tsulee Chen
Dr. Ulrich Batzdorf
Dr. Vanessa Hinson
Dr. Vartan Kurtcuoglu
Dr. Vibhor Krishna
Dr. Victor Oancea
Dr. Victoria Felix
Dr. Vijay Ravindra
Dr. Violette Recinos
Dr. William Bradley
Dr. William Butler
Dr. William Tobler
Dr. Wouter Schievink
Dr. Xiang Qian
Dr. Yong Liu
Ellen Matesanz
Gretchen Delametter
Gwen Williams
J.D.
Joanna Behm
Juliana Weninger
Julie Rauch
Karl D'Souza
Kevin Muldowney
Kimberly Sexton
Kristen Pan
Kristin Means
Lisa Cleveland
Lisa Klepper
Mary Epperson
Matt Sheers
Matthew Roberts
Michael Means
Michelle Wilson
Mr. Irfan Malik
Mr. Steven Boudreau
Mr. Wayne WIldrick
Ms. Marla Sullivan
Nancy Gaucher-Thomas
Prof. Christopher Mathias
Prof. Clare Rusbridge
Prof. Rodney Grahame
Prof. Roy Weller
Roman Fenner
Susan Chalela
Suzanne Oro
Thanda Meehan
Tracy Coval
Vegard Vinje
Victoria Guerina
Wayne Connell
Papilledema
Multi-Modal Neuroimaging for Chiari 1
What We Know About Chiari & Neuroimaging Research
Redefining Chiari I Malformation: Prevalence, Natural History, and Patient/Family Perspectives
Addressing the complexities of hEDS care using community engaged research
Why Neuroplasticity for Ehlers-Danlos Syndrome Works!
Chiari Malformation: What should I know as a patient?
Current Controversies in Chiari Malformation
Pain Treatment in Chiari
What to Know About Chiari 1 Malformation: What is Chiari and Why Do I Have Symptoms?
Presentation and Outcomes in Chiari I Malformation: Patient-Centered Interpretation of Clinical Research
Chiari as an Incidental Finding
You Don’t Always Need Surgery for your Chiari!
KarunaHOME
Ask the Expert featuring Dr. Ryan Myers
Chiari Over the Ages – Dr. Gerry Grant
I’ve Just Been Diagnosed… Now What?: A Patient’s Perspective
Relationships in Crisis: An interactive session with patients and caregivers
Preparing for Your Advocacy Meeting on the Hill: Strategies for Success
Power Over Pain: Cultivating Resilience of Mind and Body to Live with Joy
CBT Tools for Coping with Chronic Illness
Donor Advised Funds
Hope on the Horizon: Highlighting New Scientific Discoveries and the Future for Patients Like Us
How to Keep Exercising While Staying Safe and Knowing Your Boundaries
Psychological Considerations and Interventions for Coping with Chronic Illness
Dealing with Disease
Recipe for Happiness
Braeden Means and Easton Guettler Perform
Quantification of Cardiac-Related Neural Tissue Motion in Chiari 1 Malformation: A Case-Control Study
Flow-Dependence to Shunt Obstruction
Microvessels & Perivascular Space Detection Using MRI
Image-Based Models of Perivascular & Parenchymal Transport in the Rat Brain
Importance of Resistance to CSF & Brain Tissue Motion in Chiari Malformation Symptomatology
Intracranial Volume Dynamics in Arnold-Chiari Syndrome
Tachycardia & Hypertension Enhance CSF Flow Out of the Spinal Cord
Spinal Cord Motion Disorder: Introduction of a Novel Concept
Deep Breathing: One Coupling Mechanism of CSF & Venous Flow Dynamics
Intracranial Pressure in the Subarachnoid Space & Lateral Ventricle of Pigmented Rats
Spatial/Temporal Distribution Patterns of Substrates after Infusion into One Lateral Ventricle
Simulating Glymphatic Clearance in Sleep
Evaluation of Peristalsis as a Driver of Perivascular Flow
Learning Through Observation in Science: A Neurosurgeon’s Perspective
Association Between Pulsatile Components of Cerebral Blood Flow & ICP in Patients with Suspected Hydrocephalus
Quantitative Study into the Pathophysiology of Hydrocephalus
Ask the Expert: The Initial Appointment – Additional Conditions to Evaluate
Inflammatory Cytokine and Chemokine Biomarkers in POTS Patients with Elevated Adrenergic and Muscarinic Autoantibodies
Ask the Expert: The “Pentad” Patient
Ask the Expert: Clinical and Scientific Discoveries in hEDS and Associated Co-morbidities
Ask the Expert: Syringomyelia – Learning What We Don’t Know
Ask the Expert: Chiari, Ehlers Danlos syndrome and Tethered Cord in Animals
How Does Chiari Affect Quality of Life
Ask the Expert: Chiari Research – Emphasis on Bio-mechanical Parameters
Ask the Expert: Open Q&A
Ask the Expert: Chiari Malformation and Craniocervical Instability from Bone and Ligament Abnormalities
Ask the Expert: FOR KIDS: All About Chiari Malformation & Syringomyelia
Ask the Expert: Chiari malformation/craniospinal junction geometry and measurements
Ask the Expert: Chiari – Diagnosis, Treatment & Effects of Delay in Treatment
Ask the Expert: Complex Chiari
Ask the Expert: CSF Flow in Chiari, Tethered Cord and Connective Tissues Disorders
Ask the Expert: Chiari and CSF Disorders
Syringomyelia & Spinal Dysraphism, Long Term Outcomes After Surgical Intervention
Improvement in Cognitive Performance after Surgery for Chiari I Malformation: A Prospective Study at the University of Iowa
Neurobehavioral Outcomes in Patients with Myelomeningocele
Obstetric Management and Maternal Outcomes of Childbirth Among Patients with Chiari Malformation Type I
Update from the Park-Reeves Chiari Genetics Consortium
Update on Tethered Cord Common Data Elements
Recurrent Syringomyelia After Chiari Decompression Surgery
Atlanto-axial Rotary Instability Findings and Treatment Outcomes Research
Preguntas a Los Expertos: Malformación de Chiari
Ask the Expert: Surgical Considerations in Chiari I
Ask the Expert: The State of Chiari Research: Where We Have Been & Where We Are Going
Ask the Expert: Chiari I Malformation in Children
Ask the Expert: Back to School – Chiari & COVID-19
Ask the Expert: Chiari, Neural injury, Hydrocephalus, Syrinx & Arachnoid Cysts
Ask the Expert: Open Chiari Q&A with Dr. Cormac Maher
Ask the Expert – Neurology with Dr. Roger Kula
Ask the Expert: Open Q&A – Chiari & Related Disorders
Ask the Expert: Cardiology – Neurological Conditions and Connective Tissue Disorders
Bobby Jones CSF: Ask the Expert with Dr. Fraser C. Henderson, Sr.
Ask the Expert: Craniocervical Instability with Dr. Fraser C. Henderson
Ask the Experts: Tethered Cord Syndrome
Bobby Jones CSF Ask the Expert with Dr. Jeffrey P. Greenfield
Ask the Expert: Syringomyelia with Dr. Ulrich Batzdorf
Craniosynostosis and Chiari Malformations
Symptoms & Management of Autonomic Dysfunction in Ehlers-Danlos and Related Syndromes
Chiari Malformation: Diagnosis, Management & Treatment
Chiari Malformation in Children and Adolescents
Headaches in the EDS and Chiari Population & Intracranial Pressure Abnormalities
Seattle Children’s Hospital: Chiari Malformations Roundtable
Chiari Malformation & Chiari 1.5: An Update
School Success After Diagnosis: Chiari & Related Disorders
Mast Cell Activation
MUSC Grand Rounds: Mast Cell Activation
Brazilian Consensus for Chiari I: Results
Measuring Outcome in Patients Undergoing Chiari Surgery
Inheritance of Small Posterior Fossa in 2 Families Affected by Chiari I Malformation
Study Update: Posterior Fossa Decompression with and without Duraplasty
Dural Histopathologic Changes in 139 Cavalier King Charles Spaniels with Chiari-like Malformation
Pediatric Chiari 1 Malformations: Presentation, Indications for Treatment & Management
Orthostatic Intolerance & Epidural Interventions
Veterinary Medicine and Research – Chiari malformation
Chiari Malformation Diagnosis, Concerns & Surgical Considerations
London Roundtable: The genetic connective tissue disorders: Down syndrome, osteogenesis imperfecta, & EDS
London Roundtable: The epidemiology of Ehlers-Danlos syndrome
London Roundtable: Grabb-Mapstone-Oakes metric and measurement
London Roundtable: Clinical case presentations of cranio-cervical instability
London Roundtable: The case for addressing cranio-cervical instability
London Roundtable: Welcome & Opening Remarks
London Roundtable: Manifestations of dysautonomia in Ehlers-Danlos syndrome
London Roundtable: Causality, treatment, & outcomes of cranial instability, a clinical perspective
Chiari Malformation, Chiari Decompression and Neurosurgery
Posterior Fossa Decompression for Chiari Malformation & Syringomyelia: Study Update
Genetics of Chiari Malformation & Related Disorders
Headache in Arnold Chiari Malformation
About the Bobby Jones Chiari & Syringomyelia Foundation
Disability Rights: Educational Advocacy and Reasonable Accommodations
Know Your Rights: Disability Rights and Advocacy
Chiari I Malformation: The “Cover Up”
Patient Testimonial – Cassy Langa
CSF Production: Now with Co-transport of Water
Imaging & Modeling Glymphatic Responses in Diabetes
CSF Dynamics in Perivascular Space
Intracranial Pressure Elevation Alters CSF Clearance
Glymphatic System: Peri-arterial Basement Membrane Pathways
Pipeline for Investigating Underlying Mechanisms of Alzheimer’s Disease
Exploring the Trans-mantle Pressure Gradient in Hydrocephalus
CSF Circulation Failures
Power and Limit of MRI: CSF & Cerebral Blood Flow
Physiological Drivers of Fluid Flow in the Subarachnoid Space & Spinal Cord
Cranial Pulse Modulation: From Blood Flow to Drug Delivery
CSF Dynamics: Modeling & Clinical Measurements
Surgical Treatment of Chiari Malformation
Art & Perspectives in Disease and CSF Disorders
All Through Art: The Healing Arts & Self Expression
From Canvas to Clinic: Art & Medicine in Cerebrospinal Fluid Pathologies
Art & Technology in Fetal Imaging
Fetal Intervention in Spina Bifida
Transforming the Patient Experience through Virtual Human Modeling
Understanding My Complex Health Through Art
Presentation of Arts: The Aspiring Artist
Indications for Artistical Work in Training of Surgical Skills
Arts & Healing Prospectus at the Rhode Island State Arts: A Public Health Approach to Quality Care
Chiari Surgery: Expectations & Recovery
Depression, Suicide and Chronic Brain Illness
2019 Neuro Connect Summit – Physical Therapy in Ehlers-Danlos Syndrome
2019 Neuro Connect Summit – Occupational Therapy to Address Fatigue in Chronic Illness
2019 Neuro Connect Summit – Dysphagia and Speech Therapy
The Relationship Between Chiari Malformation, Syrinx (Syringomyelia) and Scoliosis
Is My Headache Due to my Chiari Malformation?
Long Term Follow Up of Foramen Magnum Decompression & Cranioplasty in Cavalier King Charles Spaniels (2005-2017)
Management of Pain of Pregnancy & Birth for Women with Chiari I: A Multi-center Study
Obex Exploration & Duraplasty to Improve Syrinx Resolution Following Chiari Decompression
One Health: Learning from Our Best Friends – Canine Chiari & Syringomyelia
Rapid-Sequence Brain Magnetic Resonance Imaging for Chiari I Malformation
Clinical Deterioration of Syringomyelia Symptoms Despite Syrinx Resolution After Chiari Decompression
Cervical Medullary Syndrome & Cranial Instability: Results of 5-Year Follow Up
Sleep Disorders in Ehlers-Danlos Syndrome (EDS) and Related Disorders
Ask the Expert: Chiari Malformation, Syringomyelia and Related Disorders Q&A
The Story of the MRI
Chiari and Chiari Concerns
Tethered Cord Syndrome and Ehlers-Danlos Syndrome
Answers to Common Questions About Chiari Malformations
Outcomes in Pediatric Chiari I Malformation Patients without Decompression
Loneliness Mediates the Relationship Between Estrogen Levels & Trauma Scores in Chiari I Malformation
Patients with ‘Benign’ Chiari Malformation Require Decompression at a Low Rate
Intradural Mechanisms Underlying Chiari Malformation Type I and Syringomyelia in Children and Adults
Craniocervical Fusion for Craniovertebral Instability
Chiari Malformation and Basilar Invagination in Fibrous Dysplasia
Beyond Enrollment: Posterior Fossa Decompression with and without Duraplasty in Chiari Malformation I with Syringoymelia
Fetal Intervention in Hydrocephalus
Treatment of Chiari-like Malformation in Cavalier King Charles Spaniel & Long-Term Follow-Up
How the Gut Regulates Brain Health
Adult Onset Hydrocephalus
Neurocardiology: Dysautonomia, Orthostatic Intolerance, POTS & Other Disorders
Common Pitfalls in Chiari Operations
August 2018 Update: Posterior Fossa Decompression Trial for Chiari & Syringomyelia
Importance of Estate Planning for Individuals with Disability
“Becoming Your Own Advocate” – Panel Discussion at 2018 St. Louis CSF Meeting
Ehlers-Danlos Syndrome and Orthostatic Intolerance
Intracranial Venous Stenting for Idiopathic Intracranial Hypertension (Pseudotumor Cerebri)
International Guidelines: Diagnosis & Management of Ehlers-Danlos Syndrome
Surgical Management of Craniocervical Junction Pathology
Occipito-Cervical Fusion in Joint Hypermobility Syndrome with Dysautonomia
Under Pressure: Intracranial Hypertension (Pseudotumor Cerebri) & Associated Headache
The Occult Tethered Cord Syndrome
Importance of Urodynamic Findings in Occult Tethered Cord Syndrome
Pain Management in Connective Tissue Disorders
Role of Physical Therapy in the Management of Connective Tissue Disorders
Pediatric Perspectives on Chronic Pain
The Role of Physical Therapy in the Treatment of Ehlers-Danlos Syndrome
Histopathology of Occult Tethered Cord Syndrome in Ehlers-Danlos Syndrome
Translation of Human & Veterinary Disease in CSF Disorders
Chiari @ School – Educational Advocacy
Preparing for Perioperative Success
Syringomyelia Update: Diagnosis, Treatment and Research
Cerebellar-Medullary Compression Syndrome: A Unifying Algorithm for Diagnosis and Management of “Chiari Malformation”
Chiari: A Fluid Disorder
Dysautonomia
The Great Debate: Posterior Fossa Decompression With or Without Duraplasty for Chiari Malformation & Syringomyelia
Five Year Follow Up of Craniocervical Fusions
Surgical Principles & Avoiding Treatment Failure
Case Study: Cervical Dystonia Resolution with Somatosensory Therapy
Imaging of Patient with Occult Tethered Cord Syndrome
Voice, Swallowing & Airway Issues Associated with Surgical Correction of Chiari
New Concepts in Spinal Cord Pathophysiology
Occipitocervical Fusion in Joint Hypermobility Syndrome with Dysautonomia
Update: Posterior Fossa Decompression With or Without Duraplasty for Chiari & Syringomyelia
Neuro-imaging of Emergency Presentations of Hereditary Connective Tissue Disorders
Diffusion Tensor Imaging Assessment of the Brainstem in Chiari Malformation
Headache Differential in the Chiari Malformation & Hypermobility Spectrum Patient
Genetic Risk Factors for Chiari Malformation Type I & Syringomyelia
The Search for Predisposition Genes in Chiari Malformation
Defining Unique Chiari Classifications
Hydrocephalus
La Malformación de Chiari *en español*
Diagnosis & Management of Chiari-Related Dystonia
Hydrocephalus
Lumbar Puncture & ICP Monitoring in Evaluation of CSF Disorders
Headaches in the Chiari & Ehlers-Danlos (EDS) Populations
Headache & Headaches in Dysautonomia and Ehlers-Danlos Syndrome (EDS)
Chiari I & Two Hidden Headache Disorders: IIH & SIH
Reclaiming Health through Wellness: Chiari Malformation, Syringomyelia & Related Disorders
Hypermobility EDS, Connective Tissue Disorders, Genetics, Joints and the Spine
Is Brain Fog Normal?: Walkthrough of a Neuropsychology Evaluation
Chiari Malformation, Dysautonomia & the Autonomic System: The Connection
POTS, Neurally Mediated Hypotension & the Tilt Table Test (Tilt Test)
Treatment of Dysautonomia: Sympatholysis for Hyperhidrosis
Syringohydromyelia in Patients with Chiari I Malformation: A Retrospective Analysis
Quantitative MRI-Based Diagnostics for Chiari Malformation
Diffusion Tensor Imaging Assessment of Microstructural Brainstem Integrity in Chiari
Multicenter Research in Chiari & Syringomyelia: Park-Reeves, the PFD Trial, & Beyond
Parent-Reported Executive Dysfunction in Children & Adolescents with Chiari Malformation Type 1
Surgical Decompression for Chiari Malformation Type I: An Age-Based Outcomes Study
60 Years Later: What Pediatric Neurosurgery Knows & Wishes It Knew About Shunted Hydrocephalus
Chiari Malformation & Neurocognition
Chiari Malformations & Current Chiari Research
Surgical Management of Chiari Malformation in Children & Adolescents
Chronic Pain & Temporomandibular Disorder: Systemic & Syndromic Implications
Pitfalls of Diagnosis & Treatment of Chiari Malformation
Syringomyelia Pathophysiology: Basic & Clinical Science
Exchange of Fluid Between a Syrinx and the Stenosed Spinal Subarachnoid Space
Interacting Fluid Compartments of the CNS: a Holistic Mathematical Modeling Approach
Mathematical Modeling of Spinal CSF Dynamics: Human and Animal Syringomyelia
Computational Modeling of Spinal Perivascular Flow
Posture Effects on CSF Pressure Gradients & Dynamics
Measuring Brain Biomechanics in Chronically Shunted Hydrocephalus with MR Elastography
Compound CSF Disorders: Hypertension, Hypotension and ICP Monitoring
In Vitro Modeling of CSF Dynamics to Investigate the Etiology of Normal Pressure Hydrocephalus (NPH)
Darcy-Brinkman Model of Shear-Augmented Dispersion in Cerebrovascular Basement Membranes & Spinal SAS
Pressure Gradient Estimation in the Spinal Canal Based on in vivo MR Measurements
Autodigestion & Proteolytic Receptor Cleavage: Digestive Enzymes on the Prowl
Subject-specific Multiporoelastic Model for Exploring the Risk Factors Associated with Dementia
Simulating the Fluid Flow of the Glymphatic System: Extracellular Fluid Flow
Bioengineering Perspective on the Human Brain Cellular Structure
CSF & Cerebral Blood Flow: What is Normal Flow?
Control of Active CSF Shunts: Is Pulse Pressure Amplitude a Suitable Control?
CSF Pressure Reduction Results in Dynamic Changes in Optic Nerve Angle on MRI
Differentiating Between Barrier Dysfunction & Drainage Reduction in CSF Protein Analysis
Measuring Brain Displacement with DENSE MRI
Welcome: Why We Are Here
Cerebellar Cognitive Affective Syndrome: Anatomy & Implications for Chiari
Myelin Imaging Mapping and its Implication for Cognition in Chiari
Cognitive & Motor Impairments in a Diseased Animal Model
Cognitive Testing in Pediatric Patients
Proposal of a Cerebellar Cognitive Test Battery: An Adult Perspective
Round Table: Excellence in Neurosurgical Techniques in Chiari
Chronic Pain Update: CDC Guidelines on Treating Chronic Pain
Early & Delayed Analgesic: Effects on Pain in Total Hip Arthroplasty
Venous Distensibility in Management of Vascular Pooling in EDS
Idiopathic Intracranial Hypertension (IIH) and Pseudotumor Cerebri Treatments
Pain Management, Chronic Pain & Hypermobility
Complex Chiari Malformation and Connective Tissue Disorders
Chiari I Decompression: Who Needs It?
Physical Therapy in Joint Hypermobility Syndrome
Urology Issues in Chiari, EDS & Connective Tissue Disorders
Hydrocephalus
Neurological & Spinal Disorders in EDS
Syringomyelia: Chiari Malformation With & Without a Syrinx
Venous Stenting in Intracranial Hypertension
Complications & Secondary Conditions of Chiari Malformation
Role of Measuring Cognition & Cognitive Function in Managing Chiari
Observation of Cognitive Dysfunction in Pediatric Chiari I
Observation of Cognitive Function in Adult Chiari Patients
Concussion and Sports-Related Injuries
Cognitive-Behavioral Perspectives on Pain
Neuropsychology of Normal Pressure Hydrocephalus
CSF Flow: Importance of Hydrodynamic Forces
MRI of Normal Pressure Hydrocephalus
The Cerebellar Cognitive Affective Syndrome
Emotional Stress & Changes in the Neurology of the Cerebellum
Translational Approach to Mechanisms of Cognitive Impairment in Chiari & CSF Disorders
Treatment Options for Chiari & Syringomyelia
Neuropsychology of Chiari Type 1
Neuropsychology of Chiari Type 1
Temporomandibular Joint Dysfunction & Sleep Disorders
Introduction – 1st Annual Cerebrospinal Fluid Disorders Symposium: Consider Chiari
DIAGNOSIS & MANAGEMENT OF SLIT VENTRICLE SYNDROME
CURRENT MANAGEMENT & TREATMENT OF TETHERED CORD & SYRINGOMYELIA
FETAL MANAGEMENT OF SPINA BIFIDA & CHIARI MALFORMATION
AGING & CEREBROSPINAL FLUID DISORDER
BRAIN OSCILLATIONS AND THE ASSESSMENT OF COGNITIVE FUNCTION
Welcome – 1st Annual Cerebrospinal Fluid Disorders Symposium: Consider Chiari
MANAGEMENT OF SPINAL DEFORMITY ASSOCIATED WITH CSF DISORDERS
CHIARI CO-MORBIDITIES: DOES EARLIER DIAGNOSIS AVERT FUTURE SURGERIES?
VARIOUS NEUROLOGICAL MANIFESTATIONS OF EHLERS DANLOS SYNDROME (EDS)
CHIARI & COGNITION
COGNITION IN CSF DISORDERS
RESEARCH UPDATE: CHIARI-LIKE MALFORMATION IN SMALL BREED DOGS
ARYA: THE MIRACLE DOG
CHIARI CO-MORBIDITY IN GORHAM-STOUT DISEASE
MECHANISMS OF PAIN IN SYRINGOMYELIA
CDE PROJECT UPDATES
THE PFD TRIAL FOR CHILDREN WITH CHIARI MALFORMATION & SYRINGOMYELIA
MECHANISTIC MODELING: THE PATHWAY TO PRECISION MEDICINE
ATLANTOAXIAL INSTABILITY & DYSAUTONOMIA
Consider Chiari: Chiari Malformations, An Overview
Consider Chiari: Treatment of Chiari Malformations & Special Considerations
Consider Chiari: Complex Chiari Malformations
Consider Chiari: Syringomyelia
Chiari CARE
Chiari Malformation: The Simple Gets Complicated
Unique Manual Physical Therapy Approach to Treat Craniocervical Instability & Chiari
What We Don’t Know (But Really Should Know) About Chiari Malformation
Chiari Malformation & Syringomyelia: Diagnosis & Treatment in 2016
Invisible No More®: The Seven Realities of the Invisible Becoming Visible
Chiari & the Mind
Seizures
2015 Children’s Night of Light Gala Patient Speaker: Rosanne Cash
Dystonia
Helping Children Cope with Chiari Surgery
Chiari Overview & Surgical Issues
UNITE@NIGHT AKRON, OHIO MEMBER WALK
LYDIA’S LIGHT TEAM VIDEO
Rehab After Chiari Surgery
Research: Past, Present and Future
Intracranial Pressure & Water Exchange: What Clinicians & Scientists Think They Know
Intracranial Hypotension: What We Know and What We Know We Don’t Know
Conversation About Radiological Normal & Pathological Threshold of Instability
Epidemiology of Hereditary Hypermobility Connective Tissue Disorders
Dysautonomia and its Relationship to Brainstem Deformity
Venous Thrombosis and Sinus Outflow Obstruction
Influence of Dysautonomia on Cardiovascular Instability in Chiari & Related Disorders
Craniocervical Junction Abnormalities: Beyond Chiari Malformation in Dogs
Cervico-Medullary Syndrome: Observations and Questions
Clinically Relevant Filum Pathology in Tethered Cord Syndrome
Pain of Musculo-Ligamentous Origin in Chiari Malformation
Mast Cell Activation Syndrome and the Autonomic Nervous System
A New an Under-Recognized Syndrome
Review of 2014 Research Colloquium
CHIARI MALFORMATION: ADVOCACY IN ACTION
Tethered Spinal Cord Syndrome
Diagnostic Testing for Orthostatic Intolerance
Pseudotumor Cerebri: Ocular Manifestations and Management
Pathophysiology of Chiari and Craniocervical Instability
Chronic Tonsillar Herniation & Pseudotumor Cerebri
Shunting Results
Long-Term Medical Management & Results of Medical Therapy
Epigenetics of Lupus & Neurodegenerative Disease
Chiari Diagnosis & Treatment Options
EDS, Hypermobility: Evolving Perspectives
TMJ & CCI in EDS & Mitakides Pain Syndrome
PANDAS, Paraneoplastic Limbic Encephalitis & Other Autoimmune Syndromes
The Discordant Report
Cardiovascular Manifestations of Hypermobility: Importance of Orthostatic Intolerance
Neuro-ophthalmology of Connective Tissue Disorders
Epidemiology, Diagnosis, & Management of Hereditary Hypermobility & Connective Tissue Disorders
Neurosurgical Management of Hereditary Hypermobility
Neuro-ophthalmology of Connective Tissue Disorders
ACUTE & CHRONIC TRAUMA AT THE CRANIOCERVICAL JUNCTION: ACUTE WHIPLASH & CHRONIC DEFORMATION
“THE SARAH SYNDROME”
COMPLICATIONS OF CHIARI
THE COMPLEX CHIARI MALFORMATION
CHIARI MALFORMATION IN THE CONTEXT OF CSF DISORDERS
CHIARI MALFORMATION & HEREDITARY DISORDERS OF CONNECTIVE TISSUE: GENETICS, DIAGNOSIS, EPIDEMIOLOGY
ORTHOSTATIC INTOLERANCE IN THE SETTING OF CHIARI MALFORMATION & EHLERS-DANLOS SYNDROME
THE DISCORDANT REPORT: PATHOLOGICAL RADIOLOGICAL FINDINGS VS. “NORMAL” FINDINGS
BEYOND CHIARI MALFORMATION: TREATING CHIARI IN DOGS
VARIOUS FORMS OF CRANIOCERVICAL STABILIZATION
PSEUDOTUMOR CEREBRI & OTHER SYNDROMES OF INTRACRANIAL HYPERTENSION
TETHERED CORD SYNDROME IN THE CHIARI PATIENT: A REVIEW
PHYSICAL THERAPY AFTER CHIARI SURGERY WITH CO-MORBID CONDITIONS
VENOUS ANOMALIES COMMON IN ARNOLD CHIARI MALFORMATION
DNA TESTING TO ASSESS ALTERED DRUG METABOLISM
REVIEW OF THE 2013 CSF RESEARCH COLLOQUIUM & CONSENSUS ON CRANIOCERVICAL INSTABILITY
“Out of the Garden”: When Scoliosis is Not Just Scoliosis
Chiari Malformations: Diagnosis & Treatment
Surgical Considerations in the Treatment of Chiari & Syringomyelia
Chiari & Syringomyelia: Research to Increase our Knowledge and Their Treatment
NBC TOUR Championship Spot for the Bobby Jones Classic
Breaking the Cycle of Chronic Pain, Poor Sleep, Depression and Fatigue
Consider Chiari: Chiari Malformation & Syringomyelia
CSF UNITE@THEHILL – LITTLE ADVOCATES
Genetic Dissection of Chiari Malformation
Mapping Perivascular Spaces in the Spinal Cord: Towards Improved Spinal Cord Flow
Automated Posterior Cranial Fossa Volumetry by MRI: Applications to Chiari I Malformation
Chiari@School
Leaky Gut Syndrome: Fact or Fiction?
Surgical Advancements in the Management of Chiari I Malformation
Chiari Malformations
Chiari Malformations Q&A
Mast Cell Activation Disorder
La Malformación de Chiari y Siringomielia
Genetic Evaluation of Drug Metabolism
Sleeping with Chiari: The Role of the Sleep Lab
Diagnosis & Treatment of Pain Associated with Chiari I Malformation & Syringomyelia
Symptoms & Signs of Cervical Medullary Syndrome in Chiari Patients
Standardization of the Radiological Measurements of the Craniocervical Junction & Instability
Craniocervical Instability with Chiari Malformation
Craniocervical Abnormalities Presenting with Circulatory Dysfunction & Fatigue
Genetic Hypermobility Syndromes
The Hypermobile Spine
Prevalence of Hypermobility and How it Manifests in the General Population
Clinical Patterns Seen in Cervical Medullary Syndrome
Deformative Stress on the CNS as it Pertains to Chronic Repetitive Trauma
Craniocervical Flexion Deformity in Hypermobility Syndrome: Diagnosis, Treatment and Two-Year Follow Up in 20 Patients with EDS
Intraoperative Reduction of Retroflexed Odontoid
Imaging of C1-C2 Instability
Atlanto-Axial Instability
Craniocervical Fusion with Condylar Screws
Stabilization and Fusion – 2 Year Follow Up
Morphometric Features of the Craniocervical Junction in Dogs with Chiari-Like Malformation
Dysautonomia and POTS in the Chiari/EDS Population
Blood And CSF Flow: What We Can See And What We Would Like To See Soon
How To Use Experimental Data Effectively in Modeling
Potential Cerebrospinal Fluid Flow Pathways in the Development of Syringomyelia
Pathogenesis and Pathology of Hydrocephalus
Pilot, Multi-Scale Numerical Framework for Brain Mechanics
A Fractional Pressure-Volume Model Of Cerebrospinal Fluid Dynamics: Marmarou’s Model Revisited
EDS Related Craniocervical Instability: Spinal Fusion with Stabilization – Two Year Follow Up
Near-Wall Ventricular Cerebrospinal Fluid Dynamics
Effect of Spinal Micro-anatomy on CSF Flow Patterns
Quantitative Assessment of the Differences in Spinal CSF Dynamics in Chiari Malformation
The Spinal Cord and Meninges as a Fluid-Filled Elastic Waveguide in Syringomyelia
Spinal Cord Nerve Roots & Denticulate Ligaments Alter CSF Dynamics in the Upper Cervical Spine
Novel MRI-Based Measurements of CSF Flow Dynamics in Pediatric Patients with Chiari Malformation
Mathematical Models of CSF Dynamics: Uses and Challenges
What Role Does CSF Play In Vision Impairment In Astronauts
Biomechanics of Demyelination Processes: How Shear Wave Propagation Can Reveal Microarchitectural Changes
What Can Animal Models Teach Us About CSF Flow Dynamics?
Fine Structure of CSF and Interstitial Fluid Spaces and Their Drainage Pathways from the Human Central Nervous System
4D MR Flow Imaging: Experiences in Hemodynamics and Potentials in CSF Hydrodynamics
Chiari & Scoliosis
Mapping Perivascular Spaces in the Spinal Cord: Towards Improved Spinal Cord Flow
Chiari Medicine: A Forum for Professionals
PTC, Chiari, Sticky Blood & EDS: The Opthalmologic Connection
Chiari & Hydrocephalus: Going With the Flow
Physical Therapy Options & Considerations for the EDS & Chiari Patient
SKYLER’S PSA
Managing Chronic Pain: A Psychological Approach
Steps to Better Health
Introduction to Chiari Malformation and Syringomyelia
Common Symptoms of Chiari Malformation
Pregnancy and Diagnostic Methodologies
Diagnosis of Craniocertebral Instability in the Chiari/EDS Population
Genetics and Heritability
Consider Chiari: Advocate Lutheran General
Hematological Problems Arising in Patients with Chiari Malformation & Ehlers-Danlos Syndrome
Genetic Dissection of Chiari Malformation
Intersection of Chiari and Fibromyalgia
The Difficult Headache and Principles of Treatment
Pain Management in Chiari
Tethered Cord & Spinal Instability: How Do I Know If I Have It?
How Do I Know If My Surgery Failed?
Chiari in the Field: Chiari & Sports
If It’s Not Chiari, What Else Could It Be?
Chiari Malformation: A Name Which Leads to Unnecessary Confusion
Radiological Aspects of Chiari, Syringomyelia, Craniocervical Instability & Related Disorders
Clinical Presentation of Ehlers-Danlos Syndrome (EDS)
Treatment of Chiari Malformation
Biomechanics of the Normal Cranio-cervical and Atlanto-axial Junction
Correction of Clivo-axial Angle in the Treatment of Chiari Malformation
Indices of Cranio-vertebral Instability
Treatment of Atlanto-axial instability
Neuroradiology of Atlanto-axial Instability
Sleep and Autonomic Disturbances
Urological Conditions in EDS
Physical Therapy
Genetic Testing, Prevalence, and Future Trends in Diagnosis of EDS
Discovering the Health Benefits of Mindfulness
Diagnosis and Treatment of Craniocervical Instability in the Chiari Patient
Limitations of Surgical Treatment in the Relief of Headaches
Pain Management
Pains Associated with Congenital Malformations of the Nervous System
Chiari Malformation & Pseudotumor Cerebri
Chiari Diagnosis and Management: A Multidisciplinary Approach
Hearing & Balance Disorders in Chiari and Related Conditions
A New Life for Zoe
Bridging the Divide
…Could you spell that for me?
Kaya’s Story
Genetics of Chiari Malformation
Genetics of Chiari Malformation Q&A
Physiotherapeutic Options for Headache After Surgery for Chiari Malformations Pt. 1
Physiotherapeutic Options for Headache After Surgery for Chiari Malformations Pt. 2
Questions You Were Afraid to Ask About Chiari and Syringomyelia Pt. 1
Questions You Were Afraid to Ask About Chiari and Syringomyelia Pt. 2
The Many Faces of Pain Pt. 1
The Many Faces of Pain Pt. 2
Now What…?
CCI: Clinical Diagnosis, Radiological Metrics, Treatment, and Outcomes Analysis
Spontaneous CSF Leak
Bidirectional Infusion Studies and the Divergence of CSF Dynamics in the Cranial and Spinal Compartments
Posture-Dependent Cranio-Spinal Pressure Dynamics and Interplay with Other Body Compartments in Sheep
CSF And Venous Blood Flow from Childhood to Adulthood Studied by Real-Time Phase-Contrast MRI
Do Neurofluids Dynamics Reflect Clinical Symptoms in Chiari 1 Malformation?
Relationship of CSF Flow, Brain Motion, and Brain Stiffness in Chiari I Patients before and after Surgery
Semiautomated Measurement of Craniocervical Structures and Syrinxes in Chiari I Malformation Patients
Real-time Imaging of Coughing in Patients with Chiari I Malformation
High-Resolution Imaging of Outflow Pathways for Cerebrospinal Fluid to Lymphatic Vessels
Intravital Imaging of the Mouse Central Nervous System Fluid Spaces Using Synchotron Radiation-based Micro Computed Tomography
CSF Pressure and Flow Dynamics in Pig Models of Traumatic and Atraumatic Subarachnoid Space Occlusion
Effect of Breathing, Blood Pressure, and Heart Rate on Spinal Fluid Flow in a Rodent Model of CSF Obstruction
A Model of Hydrocephalus as a Disorder of Intracranial Thermodynamics
Mechanisms of Transport in a Network Model of Murine Pararterial Spaces
Disease Severity, CSF Resistance, and Brain Tissue Motion in Adult Chiari malformation Type 1
Modeling Lumbar Infusion in the Context of Glymphatics
A Computational Fluid Dynamics Study to Assess the Impact of Coughing on CSF Dynamics in Chiari Type 1 Malformation
No more results