About the Bobby Jones Chiari & Syringomyelia Foundation
ST. LOUIS CHILDREN'S HOSPITAL - ST. LOUIS, MO - AUGUST 10, 2019
describes, in greater detail, all the work that Bobby Jones CSF gets up to in order to improve the lives of families affected by Chiari malformation
and related disorders
. Advancing research and providing current, relevant education for medical professionals and families alike.
then describes the scope and goals of the international patient registry that Bobby Jones CSF is currently trying to build with your help... and exactly what getting involved in that registry means for the millions affected by Chiari malformation, syringomyelia and related disorders.
This presentation was made at the 2019 Chiari Family Workshop held at St. Louis Children's Hospital. (2019)