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Bobby Jones CSF, the Bobby Jones Chiari and Syringomyelia Foundation, is a 501(c)(3) non-profit organization (TAX ID NUMER: 26-1316274). In giving today, you will offer hope to the millions of children and adults worldwide who are living with the effects of Chiari malformation, syringomyelia, and related disorders like Ehlers-Danlos syndrome and others.
Consider making a general donation to continue advancing research, educating and empowering families to be their own advocates and improving knowledge among medical professionals.
Want to help support even more education and research? Please consider giving a monthly, recurring gift! This is a great way to maximize your generosity and help even more families who may be struggling.
2021 Virtual Dinner Dance for A Cure
2021 International Night of Light Gala: Tickets, Research Sponsorship, Underwriting or Donation
There is no fee to participate in a 2021 unite@night walk. Find a walk site near you!
To send in a donation by mail, please send your tax-deductible contribution to
Bobby Jones Chiari & Syringomyelia Foundation
29 Crest Loop
Staten Island, NY 10312
All checks can be made payable to “Bobby Jones CSF.”