Now What…?

A handful of families: the Sanders/Kindlons, Fitzpatricks, Culvers , and Bobby Jones CSF Chairman, Paul Farrell share their journeys from diagnosis, through treatment and management of Chiari malformation and syringomyelia. Several awareness videos made for CSF were professionally directed and produced by Emmy-award winning film makers, Bob Bagley and Sterling Johnson. These fine videos were made possible by a very generous grant from the Jordan Family Foundation. Stories just like the ones in these videos are used to introduce educational lectures at our regional Educational and Awareness Events around the country. Revised: 9/2019