EVENTS calendar
Location: Online
Time: 7:00PM ET
Expert Speaker: Christie Cox, Patient advocate and best-selling author
Topic: Introduction to Crafting Healing Narratives Workshop: Telling Your Patient Story Online Course with Q&A
On this call, Christie Cox will be launching and discussing her 6-module video course, designed in six accessible, approximately 30-minute sessions. It is a guided experience to help you explore, shape, and reclaim your story through therapeutic writing.
This course was built from lived experience and a deep understanding of what it means to navigate complex, often misunderstood conditions like Ehlers-Danlos syndrome, Chiari malformation and syringomyelia.
Together, Bobby Jones CSF and Christie are offering this course as a gift to the patient community—because your voice deserves space, structure, and support.
Once you have registered, you will receive login instructions in the confirmation email.
Christie Cox was always bendy and sometimes witty. It wasn’t until she was properly diagnosed with Ehlers-Danlos Syndrome at 48 years old that she understood her quirkiness. Following decades of unrecognizable and untreatable health issues, since learning of her condition she has gone from being disbelieved to determined. Ms. Cox now devotes her focus, energy, and passion to supporting others facing a similar fate.
Education & Training
Board Certified Patient Advocate (BCPA)
Trained in Patient Advocacy from the Alliance for Professional Health Advocates (APHA)
Specialty Training In Ehlers Danlos Syndrome (EDS) ECHO Advocacy Program
Graduate of EDS Society ECHO Health Advocate Training
Trained Life Transformation Coach
Certified Mindfulness Instructor
Certified Mindfulness at Work Facilitator
Trained in Managing Chronic Pain with Mindfulness
Support Group Leader for the U.S. Pain Foundation
Certified Mindful Movement Instructor in Qi Gong
Certified in Laughter Therapy and Aqua Therapy
Former Award-Winning Marketing Communications Executive
Bachelor’s Degree in Communications
