Patient Events

2020 International Night of Light Gala

Date : November 20 - 21, 2020

Location: Anderson House, 2118 Massachusetts Ave NW, Washington, DC

Friday, November 20 – Time: TBD

Saturday, November 21 – Time: 6:00PM – 11:00PM

This exclusive and unique white-tie event will be held for a limited number of philanthropic guests at Andersen House. It is our hope that the money raised this year will help fund our international data registry, and support the ongoing research efforts that will ultimately lead to improved understanding and methods of diagnosis and treatment.

Excellence in Medicine Award: Dr. Harold Rekate
Dr. Rekate has recently retired as director of the Chiari Institute, within the Northwell Health System and Professor Emeritus at the Hofstra Northwell School of Medicine.   Prior to joining Northwell Dr. Rekate served as director of pediatric neurosciences and chief of pediatric neurosurgery at the Barrow Neurological Institute (BNI). While at BNI, Dr. Rekate was a clinical professor of neurosurgery at the University of Arizona College of Medicine.

Dr. Rekate completed his undergraduate studies at Duke University and received his medical degree at the Medical College of Virginia. He trained in neurosurgery and pediatric neurosurgery at the University Hospitals of Cleveland of Case Western Reserve University. On completion of his residency he was appointed Assistant Professor of Neurosurgery and Pediatrics at Case and also a Adjunct Professor of Systems and Design Engineering at Case Institute.

Dr. Rekate has served as the Chairman of the Joint Section of Pediatric Neurosurgery of the AANS and CNS.  He is past president of both the American Society for Pediatric Neurosurgeons and the International Society of Pediatric Neurosurgery. 

A widely published author of more than 200 publications, most of which are related to cerebrospinal fluid difficulties, including Chiari malformations, syringomyelia and hydrocephalus, Dr. Rekate also served as editor for a number of prestigious medical journals and was chairman of the editorial board of the Journal of Neurosurgery Pediatrics. Over the course of his career, Dr. Rekate has done extensive research regarding spinal fluid flow, receiving funding from the National Institutes of Health and the National Aeronautics and Space Administration. Dr. Rekate has received numerous awards and honors, including the prestigious Pudenz Award of Excellence in Research in Cerebrospinal Fluid Physiology.

Patient Speaker: Miss America 2020 Camille Schrier
CamiIle Schrier, 24, grew up In Bucks County, Pennsylvania, before moving to Virginia to pursue her undergraduate degrees. In 2018, Camille graduated with honors from Virginia Tech with dual Bachelor of Science degrees in Biochemistry and Systems Biology, and is currently pursuing a Doctor of Pharmacy at Virginia Commonwealth University.

In June of 2019, Camille was named Miss Virginia after breaking from tradition to perform the “catalytic decomposition of hydrogen peroxide” as her onstage talent. Her unique talent performance and focus on women in STEM has sparked a positive reaction of inclusivity for the program as a whole. Camille’s story has been shared with hundreds of children and viewed by millions. She can be seen on national and international media outlets including The Today Show, Talk Stoop, CNN, BBC, The Kelly Clarkson Show, CBS This Morning, Inside Edition, The Weather Channel, Southern Living, Canada’s CTV, Germany’s RTL, and many more.

On December 19, 2019, Camille earned the job of Miss America 2020 after competing live on NBC from Mohegan Sun Arena in Connecticut. A certified Naloxone trainer in the city of Richmond, Schrier will use the Miss America national recognition to promote her own social impact initiative, Mind Your Meds: Drug Safety and Abuse Prevention from Pediatrics to Geriatrics. Most recently, Camille was awarded the Engineering Champion Award by the Phi Sigma Rho National Sorority for her work in promoting women in engineering and technical fields. Camille will travel over 300 days this year to share her message and advocate for change.

In addition to her passion for science and drug safety, Camille has battled body image issues. As a young woman who previously battled an eating disorder, Camille chose to compete In Miss America 2020 because of the redirection from physical appearance to social impact.

Steering Committee: Dr. and Mrs. Fraser Henderson, Lady Trish Malloch-Brown, Ms. Marcia Mayo, Mr. Michael Sonnenreich, Mr. Paul Farrell, Ms. Dorothy Poppe

Hotel Room Block: We have reserved a reduced rate room block at the Fairfax at Embassy Row. This iconic hotel is an approachable, upscale, and historic icon with a recent modernization to its public spaces. Nestled among world-class boutiques, unrivaled dining and iconic monuments, The Fairfax at Embassy Row is perfectly situated in Dupont Circle, one of Washington’s most vibrant neighborhoods. To reserve your hotel room, click here.