EVENTS

Bobby Jones Chiari & Syringomyelia Foundation

Patient Events

Together We Thrive Summit

Date : June 28 - 30, 2025

Location: Washington DC

Join us for half-day wellness seminars, fun family activities, and meetings with your Congressional representatives to advocate for patients living with chronic illness. Empower yourself and speak on behalf of patients and caregivers around the country!

REGISTRATION IS CLOSED – SPOTS ALMOST FILLED – If you would like to register, please contact Cathy Poznik at 330573-5560 or cpoznik@bobbyjonescsf.org

Hotel room block available at the Hilton Garden Inn Washington DC Downtown
Group Rate: $269/night plus taxes and fees
Group Rate Dates: June 27-30, 2025
BOOK YOUR HOTEL ROOM HERE

EVENT FLYER

AGENDA, DETAILS & SPEAKERS

REGISTRATION INCLUDES!…
– Lunch on Saturday and Sunday
– Attendance at all conference wellness and advocacy sessions and educational lectures on topics including…
EDS biological basis
Spinal and neurosurgical manifestations of EDS
Neuroinflammation in EDS
Rehab in EDS
Pain management in EDS patients
Physical therapy
The social health prescription for chronic illness
Being a parent of a child with invisible illness
…along with an advocacy workshop and a patient panel!

– Scheduled meeting with congressional representatives
– Private screening of Complicated and Q&A with filmmakers

SPEAKER LINE-UP
Speakers are subject to change

Russell “Chip” Norris, PhD
Professor, Regenerative Medicine & Cell Biology
Medical University of South Carolina

Cortney Gensemer, PhD
Post-doctoral Fellow, Regenerative Medicine & Cell Biology
Medical University of South Carolina

Sunil Patel, MD
Professor, Neurological Surgery
Medical University of South Carolina

Anne Maitland, MD
Associate Professor, Rheumatology & Immunology
Medical University of South Carolina

Michelle Nichols, PhD, RN
Associate Professor, College of Health Professions
Medical University of South Carolina

Sarah Merritt, MD
Clinician, Anesthesiology & Pain Management
University of Maryland / Lifestream Health 

Beth Marks, MPT
Clinician
The Chalela Physical Therapy Institute

Christie Cox
Advisor, Author and Advocate

Molly Griggs
Program Operations & Patient-Science Coordinator
Norris Lab

Julie Rauch
Board Certified Patient Advocate

Alissa Zingman, MD
Founder & CEO
P.R.I.S.M. Spine

For more information about this year’s unite@thehill, visit our unite@thehill page here.