Patient Events
Virtual Adult & Caregiver Support Group Meeting
Date : October 28, 2025
Location:
Online
Time: 7:00PM ET
REGISTER HERE
Once you have registered, you will receive login instruction in your confirmation email.
When you’re dealing with difficult stuff like Chiari, syringomyelia and related disorders, it’s important to know you’re not alone. Join our online community and get in touch with fellow patients, parents and caregivers. Ask questions, find advice and control your level of anonymity the entire time.
Support Group Guidelines
In an effort to maintain a safe space for all attendees, we kindly ask that you please keep the following in mind during meetings:
- Consider the Focus of these Meetings
When sharing, please ensure your comments relate to the group’s focus-your medical journey and experiences living with chronic illness.
- Let Us Know if You’re Venting
If you just need to vent, that’s okay—please let us know up front. We encourage everyone to keep an open mind and be receptive when others offer support, advice, or ideas.
- Be Respectful
Please use respectful language when speaking and engaging with others. We are all here to support one another.
- Be Mindful of Time
We want to make space for everyone to share. Please be aware of how much time you are taking so others have a chance to speak as well.
- Keep a Supportive Mindset
We understand this can be a very difficult time in your life. While honesty is always welcome, we ask that you try to maintain a mindset that allows space for encouragement and mutual support.
- Respect Privacy
What’s shared in the group should stay in the group. Please do not share anyone’s personal or medical information outside the meeting unless you have their permission.
We truly appreciate everyone’s understanding and support as we continue to grow this caring community together.
