EVENTS calendar

Bobby Jones Chiari & Syringomyelia Foundation

Patient Events

Largo, Maryland In-Person Educational Lecture

Date : November 10, 2026

Location: University of Maryland Capital Region Medical Center, 901 Harry S Truman Drive North, 1st Floor Conference Center, Room H-1-S-300, Largo, MD 20774

Time:
5:00-7:30pm ET

Expert Speakers:
Dr. Fraser Henderson and Dr. Marcia Perretto

Topic:
The Hypermobile Neck: Understanding Instability and When Surgery Is Needed
CCI, AAI, and the decisions that shape treatment and recovery

REGISTER HERE to attend in person

Dr. Fraser C. Henderson Sr. was foreman on a cattle station in the Outback of Australia before receiving his Bachelor’s and Medical degrees at the University of Virginia, Charlottesville, Virginia. He served with the Multi-National Peace Keeping Force in Beirut, Lebanon, earning the Navy Commendation Medal for preparedness and treatment of mass casualties, following the terrorist bombing attack on October 23, 1983. He completed a neurosurgery residency at the Medical University of South Carolina, then served as Neurosurgeon for the 4th Marine Expeditionary Brigade in the Gulf War in 1990-91. He was International Craniospinal Fellow at The National Hospitals for Neurology and Neurosurgery, Queen Square, London. Commander Henderson was then appointed Director of Neurosurgery of the Spine and Craniocervical Junction at Georgetown University. After promotion to Professor of Neurosurgery (Scholar tract) he entered private practice in 2008, remaining academically active as Director of The Metropolitan Neurosurgery Group in Maryland, and Adjunct Professor to University of Maryland.

Dr. Henderson has published 130 peer reviewed articles, patents and book chapters, co-edited five books, and given over 200 invited lectures. Dr. Henderson is Adjunct Professor of Neurosurgery, University of Maryland School of Medicine, staff member at University Maryland Capital Regional Medical Center , Executive Board member Bobby Jones Chiari Syringomyelia Foundation and formerly of the Ehlers –Danlos Society, a member of the Pan African Academy of Christian Surgeons, and an  Officer of The Order of St. John. His recently published book, “Symptomatic” describes the diagnosis and evaluation of  the 75 symptoms of the patient with Ehlers Danlos Syndrome. His primary interest is validation of the clinical phenotype and pathophysiological endotypic mechanisms  of Craniocervical instability in the population of connective tissue disorders.

Serving also as Chief Medical Officer at Hemostemix Inc, Dr. Henderson’s other interests lie in the neurobiology of stem cells in the treatment of neuropathic pain in central nervous system disorders, such as syringomyelia, and in treatment of vasculopathy of cognitive impairment in dementia.

Dr. Marcia Perretto is a Doctor of Physical Therapy, Certified Orthopedic Manual Therapist, with advanced training in movement sciences, Lymphedema, Integrative Nutrition Health, Pilates, Yoga Therapy, and Neurac Redcord®. She is the founder and CEO of Actify, a highly specialized clinic that focuses on the wellness and treatment of those who present with joint hypermobility and Ehlers-Danlos Syndromes and its comorbidities like Dysautonomia, Mast Cell Activation Disorder, and Autonomic dysfunction – Vagus Nerve dysregulation. She has a special focus to the studies of human movement sciences as well as the neurosciences of pain and its impact on people’s lives and has developed a special approach to address the neuromyofascial pain syndromes with the use of scientific proven processes of brain training and advanced musculoskeletal methods. ​Her goal is to help those with joint hypermobility, chronic pain, MCAD, and POTS/Dysautonomia to take control of their lives by not only strengthening their muscles but through a holistic approach that addresses their entire bodies and learning how to live a healthier and more fulfilled life.

The current healthcare system is in general focused on the model of typically offers fragmented care that only focuses on one condition or body system at a time, utilizing a “Band-Aid” approach that masks symptoms without putting out the original fire. By integrating knowledge of underlying pathogens, toxic burden, food sensitivities and allergies, nervous system function, gastrointestinal health, nutrient levels, the mind-body connection, musculoskeletal function, lifestyle factors, and other health variables, Dr. Perretto believes that patients can begin to reduce inflammation and heal from the inside-out.

A one-time semi-professional figure skater who has had three hip surgeries, and has hypermobile Ehlers-Danlos Syndrome herself, she knows first hand the pain of hypermobile joints, subluxations and joint dislocations and all other systemic symptoms brought about by hEDS and the challenge of full rehabilitation when experiencing such symptoms.

Dr. Perretto is an active researcher in hypermobile Ehlers Danlos Syndrome and hypermobility disorders in partnership with several medical professionals in the areas of movement science and hypermobility syndromes. She has served as a clinical instructor for Nova Southeastern University and Florida International University for the Entry Level Doctor of Physical Therapy Program. She is an educator and recognized speaker both nationally and internationally in the areas of orthopedics, neurosciences, genetic collagen disorders and hypermobility spectrum disorders.

After receiving her Bachelor’s degree in Physical Therapy at a recognized catholic university in south Brazil, Dr. Perretto completed her transition to Doctor of Physical Therapy degree at Nova Southeastern University. Later she completed her Manual Therapy Certification at the Ola Grimsby Institute in California and a Health Coach Training program with the Institute for Integrative Nutrition in New York, where she learned more than 100 dietary theories and a holistic approach to wellness. Dr. Perretto is certified on Lymphedema treatment (LTC), holds a yoga therapy instructor certification (YTT200), and has extensive training in Neurac Redcord® and Redcord® Active. Redcord® Active is a unique suspension training process that offers a specialized skill set in kinetic-chain assessments and corrective exercise programs proven to be an efficient workout that delivers muscle strength and flexibility as well as facilitates injury prevention, rehabilitation, wellness and performance.

Dr. Perretto continuously develops her knowledge and training in movement sciences, neuroscience of pain and hypermobility syndromes and has developed advanced skills in the use of Yoga as a tool for rehabilitation and the NEURAC Redcord, a Norwegian system of musculoskeletal treatment for patients with joint instability. Dr. Perretto is the first to offer NEURAC Redcord treatment in Boca Raton. ​

She is a member of the American Physical Therapy Association (APTA), National Strength and Conditioning Association, Hypermobility Syndromes Association and the World Confederation for Physical Therapy.

Dr. Fraser C. Henderson, Sr. and Dr. Marcia Perretto