Patient Events

Virtual Parent Support Group Meeting

Date : December 14, 2021

Location: Online

Time: 7:00PM ET


Introducing our new Children’s Support Meeting at 6:30pm ET, just prior to our Parents Meeting! A parent or guardian must be present with the child at this support meeting.

Once you have registered, you will receive login instruction in your confirmation email.

When you’re dealing with difficult stuff like Chiari, syringomyelia and related disorders, it’s important to know you’re not alone. Join our online community and get in touch with fellow patients, parents and caregivers. Ask questions, find advice and control your level of anonymity the entire time.