EVENTS calendar

Bobby Jones Chiari & Syringomyelia Foundation

Patient Events

Inside the Lab: A Chiari Community Open House

Date : August 08, 2026

Location: Northeastern University, Interdisciplinary Science and Engineering Complex, First Floor, 805 Columbus Ave, Boston, MA 02120

Time: 8:00am-5:00pm ET

Presented by Bobby Jones CSF in collaboration with Northeastern University’s Chiari NeuroBiomechanics Research Lab

PATIENT REGISTRATION:

$50 per person (18 and over); $25 per person (ages 13-17); FREE for children 12 and under

PATIENT PARKING ADD-ON:

Discounted at $30 – If you registered for parking, just pick up your parking voucher at the registration table.

Continental breakfast, lunch, and refreshments will be served.

REGISTER HERE

LEARN MORE

TENTATIVE AGENDA

RESEARCH SPEAKERS AND TITLES:

Francis (Frank) Loth, Ph.D.
Professor, Mechanical & Industrial Engineering and Bioengineering — Northeastern University
Biomechanical Report: Analysis and Imaging at Northeastern (BRAIN)

Philip Allen, Ph.D.
Psychology — University of Akron; Former Deputy Director, Conquer Chiari Research Center
Effect of Pain Catastrophizing on the Relationship between Pain and Disability in Chiari Type I

Petra Klinge, M.D., Ph.D.
Associate Professor of Neurosurgery — Brown University / Rhode Island Hospital
Chiari Malformation: Inside and Outside the Dura
Clinical and Pathological Perspectives and Research on Intra- and Extradural Pathologies

Yingzi Lin, Ph.D.
Professor and Chair, Mechanical & Industrial Engineering; Director, IHMS Laboratory — Northeastern University
Novel Objective Pain Assessment Tools

Rafeeque Bhadelia, M.D.
Associate Professor, Harvard Medical School; Clinical Director of Neuroradiology — Beth Israel Deaconess Medical Center
Real-time CSF Flow Imaging in Chiari I Malformation: A New Frontier

Jonathan Millard, Ph.D.
Assistant Professor of Anatomy — Edward Via College of Osteopathic Medicine
Thinking Geometrically about Chiari Malformation Measurements

Konstantina Svokos, D.O., M.S.
Associate Professor of Neurosurgery and Pediatrics; Director of Fetal Neurosurgery — Brown University / Rhode Island Hospital
Chiari Malformation Across the Lifespan—Developmental Anomaly or Progressive Disorder? Understanding Age-Dependent Pathology and Phenotypes.

Chiara Bellini, Ph.D.
Associate Professor, Department of Bioengineering — Northeastern University
Working Under Pressure: From Cardiovascular to Neural Health

John N. Oshinski, Ph.D.
Professor, Emory University School of Medicine & Georgia Institute of Technology
Brain motion and CSF flow in subjects with CMI

Ekkehard Kasper, M.D., Ph.D.
Neurosurgeon and Professor; Former Associate Professor, Harvard Medical School & Chief of Neurosurgical Oncology — Beth Israel Deaconess Medical Center
Title TBA

Paolo Bolognese, M.D.
Neurosurgeon; Director, Chiari EDS Center — Mount Sinai South Nassau
Title TBA

Babak Heydari, Ph.D.
Professor, Mechanical & Industrial Engineering; Director, MAGICS Lab — Northeastern University
When Networks Shape What We Fear: Risk Perception from Pandemics to the Operating Room

Kristopher Kahle, M.D., Ph.D.
Nicholas T. Zervas Associate Professor of Neurosurgery, Harvard Medical School; Chief of Pediatric Neurosurgery — Massachusetts General Hospital
Chiari I Genomics

George Mattis
Northeastern University Students — MyChiari App Project
MyChiari App: Symptoms tracking tool that accounts for environmental factors

James Houston, Ph.D.
Associate Professor of Psychology; Director, MT Cognitive Aging Laboratory — Middle Tennessee State University
Neural microstructure associates of cognitive and pain symptomatology in Chiari Malformation Type I

PATIENT EXPERIENCE SPEAKERS:

Hannah Higgins, B.S.
PhD Student, Bioengineering — Northeastern University; CMI Patient

Emily Stutheit, B.S.
Fourth-Year Medical Student — Eastern Virginia Medical School; CMI Patient

GETTING THERE:

MBTA Green Line (E Branch): Northeastern Station (directly adjacent to ISEC)
MBTA Orange Line: Ruggles Station (~5 min walk)
Parking: Renaissance Garage, 835 Columbus Ave (closest public parking)

HOTEL RESERVATIONS:

A discounted room block has been reserved for the group. Make your reservation here.

CONTACT:

Questions? Email Frank Loth at f.loth@northeastern.edu