Support Bobby Jones CSF through your donor-advised fund and help drive research, education, and support for those affected by Chiari malformation, syringomyelia, and related disorders.     

If you already have a donor-advised fund through a sponsoring organization, you can recommend a grant to Bobby Jones CSF in just a few simple steps.

1. Log in to your DAF account

2. Search for our organization using the following information:

   • Legal Name: Bobby Jones Chiari & Syringomyelia Foundation

   • EIN: 26-1316270

   • Address: 29 Crest Loop, Staten Island, NY 10312

3. Select your grant amount and (optionally) specify how you'd like your gift to be used (e.g., research, patient support, general fund).

4. Submit your recommendation through your fund provider.

Click on the institution or foundation name that maintains your DAF account. If you can't find your financial institution or foundation listed below, you can grant directly from your own DAF sponsor's website.

• American Endowment Foundation
• American Online Giving Foundation
• Ayco Charitable Foundation
• Bank of America Charitable Gift Fund
• Catholic Community Foundation
• Fidelity Charitable Gift Fund
• Goldman Sachs Philanthropy Fund
• National Philanthropic Trust
• National Christian Foundation
• Network for Good
• Renaissance Charitable Foundation
• Schwab Charitable Fund
• Silicon Valley Community Foundation
• Rowe Price Charitable
• S. Bank Private Wealth Management
• S. Charitable Gift Trust
• Vanguard Charitable Endowment Program
• Viewpoint Financial Network

If your donor-advised fund is held at Fidelity Charitable, DAFgiving360 (Schwab Charitable), and the BNY Mellon Charitable Gift Fund, you can use the DAF Direct tool for a quick and secure way to initiate a grant.

Donate to Bobby Jones CSF through DAF Direct

• Tax Benefits: Receive an immediate deduction when you contribute to your DAF.

• Flexible Timing: Recommend grants when it’s convenient for you.

• Increased Impact: Invested DAF assets may grow over time—allowing you to give more.

• Legacy Giving: You can name Bobby Jones CSF as a beneficiary of your DAF to continue your impact for years to come.

If you need assistance with your DAF gift or would like to discuss your giving goals, please contact us at info@bobbyjonescsf.org or call (718) 966-2593.

Your generosity helps us improve lives through education, awareness, research, and patient advocacy. Thank you for supporting the Bobby Jones Chiari & Syringomyelia Foundation.

• Headline: Bobby Jones CSF: Revolutionizing the Fight Against Chiari, Syringomyelia, and Related Disorders
• Key Outcome 1: Global Education Impact: Millions reached with life-changing information.
  • Description: Funding transformative educational programs and research that empower a global audience with critical, up-to-date knowledge.
• Key Outcome 2: Pioneering Breakthroughs for Clinical Practice
  • Description: Spearheading the Chiari Surgical Success Scale (CSSS) study, a landmark multi-center effort involving over 260 patients, to revolutionize surgical outcome prediction.
• Key Outcome 3: Expanding Lifelines of Support and Knowledge
  • Description: Breaking down barriers to access: We're rapidly expanding vital education and support services through innovative virtual and in-person programs, including new regional sites in Texas, Utah, California, Washington, Virginia and Australia.

• The Challenge:
  • Chiari malformation, syringomyelia, and related disorders affect 1 in 100 Americans—a staggering number.  They cause debilitating pain, disrupting lives, and leaving patients and families lost in a landscape of uncertainty and limited answers.
• Our Solution:
  • Bobby Jones CSF is the driving force behind progress: funding cutting-edge research, delivering crucial education, raising widespread awareness, and advocating fiercely for those affected. We forge powerful alliances between patients, physicians, and researchers, accelerating the pace of discovery and improving care.
• Why It Matters:
  • Our work delivers more than information—we provide hope, empowerment, and tangible solutions. The CSSS study will transform surgical decision-making, giving patients and doctors the clarity they desperately need. Our expanding support network ensures that no one faces these challenges alone. Every dollar fuels research that will lead to a future where these disorders no longer define lives, where pain is minimized, and where healing is possible for everyone.
• One Page Summary:
  • Bobby Jones CSF is at the forefront of the fight against Chiari, syringomyelia, and related disorders.
  • Key achievements include:
    • Funding over $7 million in transformative education and research, with a global impact.
    • Earning the Better Business Bureau's Wise Giving Alliance seal and the GuideStar Platinum Seal—symbols of our unwavering commitment to accountability and transparency.
    • Achieving a 97/100 Charity Navigator score, reflecting our exceptional financial health and efficiency.
    • Launching the Bobby Jones CSF Center at Northeastern University in Boston, Massachusetts, a hub for groundbreaking research.
    • Initiating and managing the Chiari Surgical Success Scale (CSSS) study, a landmark multi-institutional project involving over 260 patients from 18 academic centers and private practices.
• What Your Support Makes Possible:
  • Your donations fuel our vital educational programs and support group meetings, which we've expanded in 2024 to reach even more people in Texas, Utah, California, Washington, Virginia, and beyond, both virtually and in person.
  • Your contributions power the groundbreaking Chiari Surgical Success Scale (CSSS) study, bringing us closer to personalized treatment.
  • Here's how your specific contributions drive impact:
    • $100,000: Catalyzes the "Patient/Physician Research Journey" project, accelerating the development of effective, patient-centered solutions.
    • $50,000: Convenes Our Think Tank Physician meeting where multidisciplinary participants including basic scientists, translational scientists, clinicians, researchers and students engage in educational sessions with presenters from the latest published literature topics. 
    • $25,000: Sustains our "Ask the Expert" global education series, providing patients and families worldwide with 24/7 access to reliable, no-cost information.
    • $10,000: Strengthens our regional support and education programs, connecting patients and families with local experts and peer communities through in-person and virtual meetings.
    • $5,000: Equips our dedicated staff to answer critical patient inquiries via phone and email, offering essential guidance, emotional support, and connections to treatment options and resources.
    • Every contribution, at any level, is an investment in hope. With limited resources and vast education, research, and advocacy needs, your support makes a direct and meaningful difference.
• Call to Action:
  • Donate online: bobbyjonescsf.org/donate
  • Mail donations to: Bobby Jones CSF, 29 Crest Loop, Staten Island, NY 10312
  • Learn about other ways to give: bobbyjonescsf.org/waystogive
• Visual Impact:
  • Include a photo of Bobby Jones, a photo from an event, and a map showing the states where the group has expanded its support groups.