We are so excited to host our first ever open at Bethpage on October 20, 2026! A full day of golf, dining, and supporting patients impacted by Chiari, syringomyelia and related disorders is in store.

Registration and breakfast will begin at 10:00am. Shotgun start on the Red Course will begin around 12:00pm, and lunch will be served on the course. An awards dinner will immediately follow at the Heritage Club at Bethpage.

More information will be added soon on the Open’s event page, but if you have specific questions in the meantime, please contact Mary Poppe.

It’s the end of an era! We will be hosting our 16th annual, and final Dinner Dance for a Cure in Twinsburg, Ohio on Saturday, October 17th at the Hilton Garden Inn – Twinsburg. We cannot wait to celebrate this incredible event with you and honor those who have done so much for this cause the better part of 2 decades! More details will be made available soon on the event page. If you have questions, please reach out.

The 2026 Night of Light Gala is coming back home to Washington, DC! We will be honoring true giants this year– in national, international and advocacy spaces…

Founders’ Medal for Distinguished Service: Mr. Paul J. Farrell

International Excellence in Medicine: Dr. Sunil J. Patel

International Excellence in Medicine: Professor Luca Massimi

Further information will continue to be added to the NOL event page. Check back for details!

The nearest Top Golf Across America will be at the Holtsville, NY location on May 17th! Join us for unlimited game play for 3 hours, all you can eat buffet, and a chance to win cool prizes.

This event is fully family-friendly and makes for a fun, exciting way to teach the game of golf to even the newest players.

Interested in other locations or dates? Check out our Events Page or contact Mary Poppe for details!

Ever want to step inside the research? Well, now you can! We will be hosting a full Open House of the Chiari and related disorder research lab at Northeastern University with the support of Francis Loth, PhD and their incredible team!

In addition to a full lab tour, participants will also have a full day of lectures, fellow patient/caregiver networking, support sessions, and the opportunity to participate in new research effort.

Additional details will be added over the summer on the Open House event page.

Every year, we host multiple unite4answers walks and other events in various cities around the country.

Find an event near you here. This page will be updated throughout the year!

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The 2026 Casino Night Raffle closes at #:## PM! Visit the [describe where table is] to buy your tickets!

The 2026 Silent Auction closes at #:## PM. Bid on items here.

[Any other set announcements]

Your support tonight will directly fund XXXX.