AWARENESS HUB

Bobby Jones Chiari & Syringomyelia Foundation

awareness hub

Welcome to our new Awareness Hub!

This space is dedicated to shining a light on the challenges faced by those living with complex and often misunderstood conditions. Here, you’ll find stories, resources, and updates that bring our community together—whether you’re learning about Chiari malformation, syringomyelia, Ehlers-Danlos syndrome, or other related conditions. Our goal is to spread understanding, foster connection, and provide hope for everyone impacted.

updated 09/2025