AWARENESS HUB

Bobby Jones Chiari & Syringomyelia Foundation

Rare Disease Awareness Month

February

Every February, we celebrate Rare Disease Awareness month to spread knowledge and credible medical content to educate patients looking for resources for this challenging condition. To honor the special occasion meaningfully for our community, we want to start with what matters most to you. We believe that begins with an understanding of rare diseases.

Learn more about rare diseases

Stay tuned for articles and resources devoted to rare diseases.

ARTICLES

Coming Soon

RESOURCES

Coming Soon