Neuro Connect Alliance

Thank you to our 2019 partners: Dysautonomia Support Network and Ehlers-Danlos Society

The mission of the Neuro Connect Alliance is to connect non-profit organizations, specialists, advocates, and patients touched by these separate, but related disorders to share knowledge and forge partnerships that will advance collaborative research, unite advocacy efforts and improve health outcomes and increase overall quality-of-life through joint advocacy efforts.

Join us as we storm Capitol Hill to make a difference for people living with Chiari malformation, syringomyelia, dysautonomia, Ehlers-Danlos syndrome, and many other related disorders.

Since we began our quest, Congress has passed important legislation like the 21st Century Cures Act which promises to fund more innovative medical research, especially for debilitating neurological disorders which are often overlooked for governmental funding.

VISIT THE NEURO CONNECT SUMMIT WEBSITE TO LEARN MORE AND REGISTER TO JOIN US!