CSF sponsored its first Research Colloquium, held on October 1-2, 2011 at the Cosmos Club in Washington, DC.
This colloquium represented one of the earliest meetings where meaningful discussions were had about the potential connections between Ehlers-Danlos syndrome and Chiari malformation. Since these presentations were made early into these discussions, the views and opinions expressed by the participants in this Colloquium are their own, based upon their individual specific experiences or their general observations reacting to circumstances. The views expressed and the statements made by participating physicians do not represent specific medical advice, nor do they represent any official policy or position taken by CSF.
Clinical Presentation of EDS – Clair Francomano, MD
Treatment of Chiari Malformation – John Oró, MD
Biomechanics of the Normal Cranio-cervical and Atlanto-axial Junction – Jean-Marc Voyadzis, MD
Correction of Clivo-axial Angle in the Treatment of Chiari Malformation – Nicholas Theodore, MD
Indices of Cranio-vertebral Instability – Fraser C. Henderson Sr., MD
Open Discussion – Craniovertebral Instability
Treatment of Atlanto-axial instability – Atiq Durrani, MD
Neuroradiology of Atlanto-axial Instability – Myles Koby, MD
Open Discussion – Atlanto-axial Instability
Sleep and Autonomic Disturbances – Alan Pocinki, MD
Urological Conditions in EDS – Jonah Murdock, MD, PhD
Physical Therapy – Jan Dommerholt, DPT
Genetic Testing, Prevalence, and Future Trends in Diagnosis of EDS – Brad Tinkle, MD, PhD
Counseling of Patients with EDS and The Caregiver’s Perspective (not filmed for privacy measures) – Jessica Adcock & Lisa Mathis
