Because Chiari malformation, syringomyelia and related disorders are so poorly understood by the public and medical professionals alike, awareness, education and support are Bobby Jones CSF’s top priorities.
Are you someone, or have a loved one, with Chiari malformation, Syringomyelia, Ehlers-Danlos syndrome, or a related disorder? Searching for a community that will raise some questions, find some answers, and share some humor and personal experiences in a fun and engaging forum? Welcome to The Chiari Champion. I’m Noah Forman, and this podcast’s purpose is to raise awareness, seek solutions, and share our stories so that we can grow, heal, and bond – to live life to its fullest and find strength in our purpose. So join me on this journey, where I’ll be joined by special guests, medical experts, innovative thinkers, and prominent voices in the field. The Chiari Champion…let’s start conquering each week…together. Follow us now on Apple Podcasts, Spotify, or whenever you enjoy your podcasts.