Bobby Jones Chiari & Syringomyelia Foundation

2026 Chiari Research Open House

Presented by the Chiari Neurobiomechanics Research Lab (CNRL) and the Bobby Jones Chiari & Syringomyelia Foundation

About

On August 8th, the 2026 Chiari Research Open House brought together researchers, clinicians, patients, and students for a full day of scientific talks, poster presentations, and live demonstrations centered on Chiari malformation, cerebrospinal fluid dynamics, and neurobiomechanics. The event showcased the latest work from the Chiari Neurobiomechanics Research Laboratory at Northeastern University alongside invited presentations from leading researchers and surgeons across the field.

Also included was a dedicated Patient Experience session, featuring talks from CMI patient advocates and individuals living with Chiari malformation — bridging the gap between clinical research and the patient community. All were welcome: engineers, neuroscientists, surgeons, students, patients, and anyone curious about this important area of research.

If you missed the presentations or would like to hear them again, please find them below!

PRESENTATIONS

Surgical Management of Chiari Malformation: Approaches, Techniques, and Pitfalls
Ekkehard Kasper, MD | Brighton, MA

Brain Motion and CSF Flow in Subjects with CMI
John Oshinski, PhD

MyChiari App: Symptoms Tracking Tool that Accounts for Environmental Factors
George Mattis and Matthew Bloom

Chiari Malformation Across the Lifespan – Developmental Anomaly or Progressive Disorder? Understanding Age-Dependent Pathology and Phenotypes
Konstantina Svokos, MD

Chiari Malformation: Inside and Outside the Dura – Clinical and Pathological Perspective on Intra- and Extradural Pathologies
Petra Klinge, MD

Working Under Pressure: From Cardiovascular to Neural Health
Chiari Bellini, PhD

Novel Objective Pain Assessment Tools
Yingzi Lin, PhD

When Networks Shape What We Fear: Risk Perception from Pandemics to the Operating Room
Babak Heydari, PhD

Effect of Pain Catastrophizing on the Relationship between Pain and Disability in Chiari Type I
Philip A. Allen, PhD

Neural Microstructure Associates of Cognitive and Pain Symptomatology in Chiari Malformation Type I
James R. Houston, PhD

Patient Experience Panel
Emily Stutheit, Matthew Bloom, Victoria Wyma, Hannah Higgins

Complex Chiari and NeuroEDS
Paolo Bolognese, MD

Real-Time CSF Flow Imaging in Chiari 1 Malformation: A New Frontier
Rafeeque Bhadelia, MD

Biomechanics Report: Analysis and Imaging at Northeastern (BRAIN)
Francis Loth, PhD

DEMOS

MyChiari App for iOs to Track Chiari Symptoms

Transcranial Magnetic Stimulation (TMS) to Improve Symptoms for CMI Patients

Gait Analysis Assessment for CMI Patients

Objective Measurement of Pain in CMI

Spinal Flow Care as an Alternative Holistic Practice