Board of Directors Director



Director, Founding Member

Lory and her husband Rob raised their three children, Matt, Mitch and Macy in Naperville, IL but they are in the process of relocating to South Carolina now that they are “empty-nesters”. Matt was diagnosed with Chiari malformation at the age of 22 months after a grueling two years of exploring many false leads. Upon receiving the diagnosis of CMI, Rob and Lory spent months educating themselves about Chiari and the different surgical techniques used by different doctors. Finally, in July of 2000, they selected the fifth neurosurgeon they interviewed and Matt had a posterior fossa decompression to alleviate his uncontrollable pain. In spite of a long recovery, Matt, their oldest, is now a leading very normal life as a symptom-free 23-year old college graduate and fire-medic. His surgery is very much considered a success story, but the harrowing journey to uncover a proper diagnosis motivated Lory to become involved in raising Chiari awareness both within the medical community and amongst the general public as well.

Lory received her undergraduate degree in Business Management 1992. In December of 2013, she earned a Master’s of Arts In Liberal Sciences from North Central College in Naperville, IL. Before having children, Lory worked as a media supervisor for Leo Burnett in Chicago. She used this experience to help her when she served on the Board of Directors of the American Syringomyelia Alliance Project (ASAP) from 2002 to 2005. In addition, she was the Chair of the Arlington Race for a Cure fundraiser for many years and worked closely with the Development team in this position. In the fall of 2007, when Lory felt that a new, unique organization was called for in the CM/SM world, she was instrumental in founding CSF with her fellow Board members.

Lory is passionate about everything she does and remains actively involved in the search for a cure for Chiari and syringomyelia at CSF.

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